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Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project

INTRODUCTION: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adoles...

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Autores principales: Viksveen, Petter, Cardenas, Nicole E., Ibenfeldt, Maya, Meldahl, Laia G., Krijger, Lou, Game, Julia R., Andvik, Maren McLean, Cuddeford, Oliver, Duerto, Samuel, Mustafa, Murad, Tong, Mathias
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8849237/
https://www.ncbi.nlm.nih.gov/pubmed/34761487
http://dx.doi.org/10.1111/hex.13383
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author Viksveen, Petter
Cardenas, Nicole E.
Ibenfeldt, Maya
Meldahl, Laia G.
Krijger, Lou
Game, Julia R.
Andvik, Maren McLean
Cuddeford, Oliver
Duerto, Samuel
Mustafa, Murad
Tong, Mathias
author_facet Viksveen, Petter
Cardenas, Nicole E.
Ibenfeldt, Maya
Meldahl, Laia G.
Krijger, Lou
Game, Julia R.
Andvik, Maren McLean
Cuddeford, Oliver
Duerto, Samuel
Mustafa, Murad
Tong, Mathias
author_sort Viksveen, Petter
collection PubMed
description INTRODUCTION: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration. METHODS: An autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers. RESULTS: Six themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of ‘the adolescent voice’; (5) Self‐determination—supporting adolescents' involvement in decision‐making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome. CONCLUSION: This self‐reflective process describing a 4‐year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of ‘research culture’ to expand the currently limited involvement of adolescents in research. PATIENT OR PUBLIC CONTRIBUTION: Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self‐ and group‐reflective processes, analysis and authoring the article.
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spelling pubmed-88492372022-02-25 Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project Viksveen, Petter Cardenas, Nicole E. Ibenfeldt, Maya Meldahl, Laia G. Krijger, Lou Game, Julia R. Andvik, Maren McLean Cuddeford, Oliver Duerto, Samuel Mustafa, Murad Tong, Mathias Health Expect Original Articles INTRODUCTION: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration. METHODS: An autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers. RESULTS: Six themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of ‘the adolescent voice’; (5) Self‐determination—supporting adolescents' involvement in decision‐making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome. CONCLUSION: This self‐reflective process describing a 4‐year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of ‘research culture’ to expand the currently limited involvement of adolescents in research. PATIENT OR PUBLIC CONTRIBUTION: Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self‐ and group‐reflective processes, analysis and authoring the article. John Wiley and Sons Inc. 2021-11-10 2022-02 /pmc/articles/PMC8849237/ /pubmed/34761487 http://dx.doi.org/10.1111/hex.13383 Text en © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Viksveen, Petter
Cardenas, Nicole E.
Ibenfeldt, Maya
Meldahl, Laia G.
Krijger, Lou
Game, Julia R.
Andvik, Maren McLean
Cuddeford, Oliver
Duerto, Samuel
Mustafa, Murad
Tong, Mathias
Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title_full Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title_fullStr Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title_full_unstemmed Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title_short Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
title_sort involvement of adolescent representatives and coresearchers in mental health research: experiences from a research project
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8849237/
https://www.ncbi.nlm.nih.gov/pubmed/34761487
http://dx.doi.org/10.1111/hex.13383
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