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How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia

A constructivist grounded theory approach was used to understand how some people living with stigmatized health conditions develop positive deviance to overcome stigma. We examined interviews from 13 identified positive deviants living with four different stigmatized health conditions (HIV, leprosy,...

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Autores principales: Rai, Sarju Sing, Syurina, Elena V., Peters, Ruth M. H., Putri, Annisa Ika, Irwanto, Irwanto, Zweekhorst, Marjolein B. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8853968/
https://www.ncbi.nlm.nih.gov/pubmed/34904455
http://dx.doi.org/10.1177/10497323211058164
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author Rai, Sarju Sing
Syurina, Elena V.
Peters, Ruth M. H.
Putri, Annisa Ika
Irwanto, Irwanto
Zweekhorst, Marjolein B. M.
author_facet Rai, Sarju Sing
Syurina, Elena V.
Peters, Ruth M. H.
Putri, Annisa Ika
Irwanto, Irwanto
Zweekhorst, Marjolein B. M.
author_sort Rai, Sarju Sing
collection PubMed
description A constructivist grounded theory approach was used to understand how some people living with stigmatized health conditions develop positive deviance to overcome stigma. We examined interviews from 13 identified positive deviants living with four different stigmatized health conditions (HIV, leprosy, schizophrenia, and diabetes) in Indonesia. Positive deviance develops in the form of psychological empowerment through improvement of self-belief and perception (intrapersonal component), development of understanding and skill to exert control in life (interactional component), and self-discovery of successful behaviors and strategies to avert stigma (behavioral component). Positive deviants, after being empowered, start empowering others affected by sharing their knowledge and fostering social awareness and acceptance. The findings revealed the presence of problem-solving ability and agency within the community of stigmatized individuals in Indonesia and warrant researchers to partner with the community to expedite the diffusion of transferable positive deviant strategies within and outside the communities.
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spelling pubmed-88539682022-02-19 How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia Rai, Sarju Sing Syurina, Elena V. Peters, Ruth M. H. Putri, Annisa Ika Irwanto, Irwanto Zweekhorst, Marjolein B. M. Qual Health Res Research Articles A constructivist grounded theory approach was used to understand how some people living with stigmatized health conditions develop positive deviance to overcome stigma. We examined interviews from 13 identified positive deviants living with four different stigmatized health conditions (HIV, leprosy, schizophrenia, and diabetes) in Indonesia. Positive deviance develops in the form of psychological empowerment through improvement of self-belief and perception (intrapersonal component), development of understanding and skill to exert control in life (interactional component), and self-discovery of successful behaviors and strategies to avert stigma (behavioral component). Positive deviants, after being empowered, start empowering others affected by sharing their knowledge and fostering social awareness and acceptance. The findings revealed the presence of problem-solving ability and agency within the community of stigmatized individuals in Indonesia and warrant researchers to partner with the community to expedite the diffusion of transferable positive deviant strategies within and outside the communities. SAGE Publications 2021-12-14 2022-03 /pmc/articles/PMC8853968/ /pubmed/34904455 http://dx.doi.org/10.1177/10497323211058164 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Articles
Rai, Sarju Sing
Syurina, Elena V.
Peters, Ruth M. H.
Putri, Annisa Ika
Irwanto, Irwanto
Zweekhorst, Marjolein B. M.
How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title_full How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title_fullStr How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title_full_unstemmed How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title_short How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia
title_sort how do positive deviants overcome health-related stigma? an exploration of development of positive deviance among people with stigmatized health conditions in indonesia
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8853968/
https://www.ncbi.nlm.nih.gov/pubmed/34904455
http://dx.doi.org/10.1177/10497323211058164
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