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Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcar...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8859678/ https://www.ncbi.nlm.nih.gov/pubmed/35175151 http://dx.doi.org/10.1177/23259582221079148 |
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author | Vader, Kyle Chan Carusone, Soo Aubry, Rachel Ahluwalia, Puja Murray, Carolann Baxter, Larry Robinson, Gregory Ibáñez-Carrasco, Francisco Stewart, Ann Solomon, Patricia O’Brien, Kelly K. |
author_facet | Vader, Kyle Chan Carusone, Soo Aubry, Rachel Ahluwalia, Puja Murray, Carolann Baxter, Larry Robinson, Gregory Ibáñez-Carrasco, Francisco Stewart, Ann Solomon, Patricia O’Brien, Kelly K. |
author_sort | Vader, Kyle |
collection | PubMed |
description | Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcare providers participated in an interview, of which ten PLWH participated in a follow-up focus group discussion. The HDQ has value in clinical practice, including its role in assessing disability, facilitating communication, tailoring treatments, and guiding referrals. Strengths of the HDQ included its comprehensiveness, relevance of domains, and importance of specific items. Concerns related to length of the HDQ, the potential for some items to trigger emotional response, and negative connotations with the term ‘disability.’ Recommendations for HDQ implementation included the importance of score interpretability, shortening the questionnaire, and tailoring administration to the individual. Results suggest the HDQ possesses clinical utility with PLWH and healthcare providers. |
format | Online Article Text |
id | pubmed-8859678 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-88596782022-02-22 Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers Vader, Kyle Chan Carusone, Soo Aubry, Rachel Ahluwalia, Puja Murray, Carolann Baxter, Larry Robinson, Gregory Ibáñez-Carrasco, Francisco Stewart, Ann Solomon, Patricia O’Brien, Kelly K. J Int Assoc Provid AIDS Care Original Research Article Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcare providers participated in an interview, of which ten PLWH participated in a follow-up focus group discussion. The HDQ has value in clinical practice, including its role in assessing disability, facilitating communication, tailoring treatments, and guiding referrals. Strengths of the HDQ included its comprehensiveness, relevance of domains, and importance of specific items. Concerns related to length of the HDQ, the potential for some items to trigger emotional response, and negative connotations with the term ‘disability.’ Recommendations for HDQ implementation included the importance of score interpretability, shortening the questionnaire, and tailoring administration to the individual. Results suggest the HDQ possesses clinical utility with PLWH and healthcare providers. SAGE Publications 2022-02-17 /pmc/articles/PMC8859678/ /pubmed/35175151 http://dx.doi.org/10.1177/23259582221079148 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Original Research Article Vader, Kyle Chan Carusone, Soo Aubry, Rachel Ahluwalia, Puja Murray, Carolann Baxter, Larry Robinson, Gregory Ibáñez-Carrasco, Francisco Stewart, Ann Solomon, Patricia O’Brien, Kelly K. Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title | Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title_full | Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title_fullStr | Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title_full_unstemmed | Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title_short | Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers |
title_sort | examining the utility of the hiv disability questionnaire (hdq) in clinical practice: perspectives of people living with hiv and healthcare providers |
topic | Original Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8859678/ https://www.ncbi.nlm.nih.gov/pubmed/35175151 http://dx.doi.org/10.1177/23259582221079148 |
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