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Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers

Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcar...

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Autores principales: Vader, Kyle, Chan Carusone, Soo, Aubry, Rachel, Ahluwalia, Puja, Murray, Carolann, Baxter, Larry, Robinson, Gregory, Ibáñez-Carrasco, Francisco, Stewart, Ann, Solomon, Patricia, O’Brien, Kelly K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8859678/
https://www.ncbi.nlm.nih.gov/pubmed/35175151
http://dx.doi.org/10.1177/23259582221079148
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author Vader, Kyle
Chan Carusone, Soo
Aubry, Rachel
Ahluwalia, Puja
Murray, Carolann
Baxter, Larry
Robinson, Gregory
Ibáñez-Carrasco, Francisco
Stewart, Ann
Solomon, Patricia
O’Brien, Kelly K.
author_facet Vader, Kyle
Chan Carusone, Soo
Aubry, Rachel
Ahluwalia, Puja
Murray, Carolann
Baxter, Larry
Robinson, Gregory
Ibáñez-Carrasco, Francisco
Stewart, Ann
Solomon, Patricia
O’Brien, Kelly K.
author_sort Vader, Kyle
collection PubMed
description Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcare providers participated in an interview, of which ten PLWH participated in a follow-up focus group discussion. The HDQ has value in clinical practice, including its role in assessing disability, facilitating communication, tailoring treatments, and guiding referrals. Strengths of the HDQ included its comprehensiveness, relevance of domains, and importance of specific items. Concerns related to length of the HDQ, the potential for some items to trigger emotional response, and negative connotations with the term ‘disability.’ Recommendations for HDQ implementation included the importance of score interpretability, shortening the questionnaire, and tailoring administration to the individual. Results suggest the HDQ possesses clinical utility with PLWH and healthcare providers.
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spelling pubmed-88596782022-02-22 Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers Vader, Kyle Chan Carusone, Soo Aubry, Rachel Ahluwalia, Puja Murray, Carolann Baxter, Larry Robinson, Gregory Ibáñez-Carrasco, Francisco Stewart, Ann Solomon, Patricia O’Brien, Kelly K. J Int Assoc Provid AIDS Care Original Research Article Our aim was to examine the utility of the HIV Disability Questionnaire (HDQ), a patient-reported outcome measure for use in clinical practice from the perspectives of people living with HIV (PLWH) and healthcare providers. We conducted a qualitative descriptive study. Fifteen PLWH and five healthcare providers participated in an interview, of which ten PLWH participated in a follow-up focus group discussion. The HDQ has value in clinical practice, including its role in assessing disability, facilitating communication, tailoring treatments, and guiding referrals. Strengths of the HDQ included its comprehensiveness, relevance of domains, and importance of specific items. Concerns related to length of the HDQ, the potential for some items to trigger emotional response, and negative connotations with the term ‘disability.’ Recommendations for HDQ implementation included the importance of score interpretability, shortening the questionnaire, and tailoring administration to the individual. Results suggest the HDQ possesses clinical utility with PLWH and healthcare providers. SAGE Publications 2022-02-17 /pmc/articles/PMC8859678/ /pubmed/35175151 http://dx.doi.org/10.1177/23259582221079148 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research Article
Vader, Kyle
Chan Carusone, Soo
Aubry, Rachel
Ahluwalia, Puja
Murray, Carolann
Baxter, Larry
Robinson, Gregory
Ibáñez-Carrasco, Francisco
Stewart, Ann
Solomon, Patricia
O’Brien, Kelly K.
Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title_full Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title_fullStr Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title_full_unstemmed Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title_short Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers
title_sort examining the utility of the hiv disability questionnaire (hdq) in clinical practice: perspectives of people living with hiv and healthcare providers
topic Original Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8859678/
https://www.ncbi.nlm.nih.gov/pubmed/35175151
http://dx.doi.org/10.1177/23259582221079148
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