Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study

INTRODUCTION: In France, the cystic fibrosis (CF) care pathway is coordinated by multidisciplinary teams from specialised CF centres or transplant centres. It includes the care provided at home or out of hospital, risk prevention in daily life and adjustments to social life, which together contribut...

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Detalles Bibliográficos
Autores principales: Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Heymes-Royer, C., Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8861995/
https://www.ncbi.nlm.nih.gov/pubmed/35193621
http://dx.doi.org/10.1186/s13023-022-02204-0

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