Genomic testing for children with interstitial and diffuse lung disease (chILD): parent satisfaction, understanding and health-related quality of life

OBJECTIVE: Research is needed to determine best practice for genomic testing in the context of child interstitial or diffuse lung disease (chILD). We explored parent’s and child’s health-related quality of life (HRQoL), parents’ perceived understanding of a genomic testing study, satisfaction with i...

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Detalles Bibliográficos
Autores principales: Kelada, Lauren, Wakefield, Claire, Vidic, Nada, Armstrong, David S, Bennetts, Bruce, Boggs, Kirsten, Christodoulou, John, Harrison, Joanne, Ho, Gladys, Kapur, Nitin, Lindsey-Temple, Suzanna, McDonald, Tim, Mowat, David, Schultz, André, Selvadurai, Hiran, Tai, Andrew, Jaffe, Adam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Paediatric Lung Disease
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8862491/
https://www.ncbi.nlm.nih.gov/pubmed/35190460
http://dx.doi.org/10.1136/bmjresp-2021-001139

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8862491/
https://www.ncbi.nlm.nih.gov/pubmed/35190460
http://dx.doi.org/10.1136/bmjresp-2021-001139

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