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Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey

Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA. A cross-sectional survey was administered to AYA...

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Autores principales: Bender, Jacqueline L., Puri, Natasha, Salih, Sarah, D’Agostino, Norma M., Tsimicalis, Argerie, Howard, A. Fuchsia, Garland, Sheila N., Chalifour, Karine, Drake, Emily K., Marrato, Anthony, McKean, Nikki L., Gupta, Abha A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8870696/
https://www.ncbi.nlm.nih.gov/pubmed/35200598
http://dx.doi.org/10.3390/curroncol29020099
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author Bender, Jacqueline L.
Puri, Natasha
Salih, Sarah
D’Agostino, Norma M.
Tsimicalis, Argerie
Howard, A. Fuchsia
Garland, Sheila N.
Chalifour, Karine
Drake, Emily K.
Marrato, Anthony
McKean, Nikki L.
Gupta, Abha A.
author_facet Bender, Jacqueline L.
Puri, Natasha
Salih, Sarah
D’Agostino, Norma M.
Tsimicalis, Argerie
Howard, A. Fuchsia
Garland, Sheila N.
Chalifour, Karine
Drake, Emily K.
Marrato, Anthony
McKean, Nikki L.
Gupta, Abha A.
author_sort Bender, Jacqueline L.
collection PubMed
description Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA. A cross-sectional survey was administered to AYA, diagnosed with cancer between the ages of 15–39, at a cancer center and through social media. Descriptive summary statistics were calculated. Participants (n = 436) were on average 31.2 years (SD = 6.3), 3.3 years since-diagnosis (SD = 3.8), and 65% (n = 218) were women. Over three-quaters (n = 291, 76.6%) desired peer support from cancer peers, but 41.4% (n = 157) had not accessed peer support. Main access barriers were: Inconvenience of in-person support groups (n = 284, 76.1%), finding AYA with whom they could relate (n = 268, 72.4%), and finding AYA-specific support programs (n = 261, 70.4%). Eighty-two percent (n = 310) desired support from a peer navigator through a digital app, and 63% (n = 231) were interested in being a peer navigator. Participants indicated a greater need for emotional (n = 329, 90.1%) and informational support (n = 326, 89.1%) than companionship (n = 284, 78.0%) or practical support (n = 269, 73.6%) from a peer navigator. Foremost peer matching characteristics were cancer-type (n = 329, 88.4%), specific concerns (n = 317, 86.1%), and age-at-diagnosis (n = 316, 86.1%). A digital peer navigation program was desired by over 80% of a large Canadian sample of AYA and could potentially overcome the barriers AYA experience in accessing peer support. The design of a peer navigation program for AYA should consider the matching characteristics and multidimensional support needs of AYA.
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spelling pubmed-88706962022-02-25 Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey Bender, Jacqueline L. Puri, Natasha Salih, Sarah D’Agostino, Norma M. Tsimicalis, Argerie Howard, A. Fuchsia Garland, Sheila N. Chalifour, Karine Drake, Emily K. Marrato, Anthony McKean, Nikki L. Gupta, Abha A. Curr Oncol Article Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA. A cross-sectional survey was administered to AYA, diagnosed with cancer between the ages of 15–39, at a cancer center and through social media. Descriptive summary statistics were calculated. Participants (n = 436) were on average 31.2 years (SD = 6.3), 3.3 years since-diagnosis (SD = 3.8), and 65% (n = 218) were women. Over three-quaters (n = 291, 76.6%) desired peer support from cancer peers, but 41.4% (n = 157) had not accessed peer support. Main access barriers were: Inconvenience of in-person support groups (n = 284, 76.1%), finding AYA with whom they could relate (n = 268, 72.4%), and finding AYA-specific support programs (n = 261, 70.4%). Eighty-two percent (n = 310) desired support from a peer navigator through a digital app, and 63% (n = 231) were interested in being a peer navigator. Participants indicated a greater need for emotional (n = 329, 90.1%) and informational support (n = 326, 89.1%) than companionship (n = 284, 78.0%) or practical support (n = 269, 73.6%) from a peer navigator. Foremost peer matching characteristics were cancer-type (n = 329, 88.4%), specific concerns (n = 317, 86.1%), and age-at-diagnosis (n = 316, 86.1%). A digital peer navigation program was desired by over 80% of a large Canadian sample of AYA and could potentially overcome the barriers AYA experience in accessing peer support. The design of a peer navigation program for AYA should consider the matching characteristics and multidimensional support needs of AYA. MDPI 2022-02-16 /pmc/articles/PMC8870696/ /pubmed/35200598 http://dx.doi.org/10.3390/curroncol29020099 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Bender, Jacqueline L.
Puri, Natasha
Salih, Sarah
D’Agostino, Norma M.
Tsimicalis, Argerie
Howard, A. Fuchsia
Garland, Sheila N.
Chalifour, Karine
Drake, Emily K.
Marrato, Anthony
McKean, Nikki L.
Gupta, Abha A.
Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title_full Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title_fullStr Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title_full_unstemmed Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title_short Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
title_sort peer support needs and preferences for digital peer navigation among adolescent and young adults with cancer: a canadian cross-sectional survey
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8870696/
https://www.ncbi.nlm.nih.gov/pubmed/35200598
http://dx.doi.org/10.3390/curroncol29020099
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