Cargando…

Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan

The prevalence of autism spectrum disorders (ASD) in Taiwan has been increasing, and genetic testing for ASD has been available and provided to parents of children diagnosed with ASD in Taiwan. However, there is still limited understanding of Taiwanese parents’ knowledge of and attitudes toward such...

Descripción completa

Detalles Bibliográficos
Autores principales: Li, Ming, Zhao, Shi-Xi, Chen, Wei-Ju, Huang, Tse-Yang, Chen, Lei-Shih
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8871752/
https://www.ncbi.nlm.nih.gov/pubmed/35205283
http://dx.doi.org/10.3390/genes13020239
_version_ 1784657070897758208
author Li, Ming
Zhao, Shi-Xi
Chen, Wei-Ju
Huang, Tse-Yang
Chen, Lei-Shih
author_facet Li, Ming
Zhao, Shi-Xi
Chen, Wei-Ju
Huang, Tse-Yang
Chen, Lei-Shih
author_sort Li, Ming
collection PubMed
description The prevalence of autism spectrum disorders (ASD) in Taiwan has been increasing, and genetic testing for ASD has been available and provided to parents of children diagnosed with ASD in Taiwan. However, there is still limited understanding of Taiwanese parents’ knowledge of and attitudes toward such testing. Therefore, the present study addressed this gap by assessing the attitudes toward as well as actual and perceived knowledge of ASD genetic testing among Taiwanese parents of children diagnosed with ASD. A sample of 443 parents of children with ASD recruited from 236 public schools in Taiwan completed a paper-and-pencil survey. Although parents generally held favorable attitudes toward ASD genetic testing, they had deficient knowledge of such test (with only a 31.4% average correct rate on the actual knowledge scale). Tailored health education materials should be developed to improve the knowledge of ASD genetic testing among parents with affected children in Taiwan.
format Online
Article
Text
id pubmed-8871752
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-88717522022-02-25 Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan Li, Ming Zhao, Shi-Xi Chen, Wei-Ju Huang, Tse-Yang Chen, Lei-Shih Genes (Basel) Article The prevalence of autism spectrum disorders (ASD) in Taiwan has been increasing, and genetic testing for ASD has been available and provided to parents of children diagnosed with ASD in Taiwan. However, there is still limited understanding of Taiwanese parents’ knowledge of and attitudes toward such testing. Therefore, the present study addressed this gap by assessing the attitudes toward as well as actual and perceived knowledge of ASD genetic testing among Taiwanese parents of children diagnosed with ASD. A sample of 443 parents of children with ASD recruited from 236 public schools in Taiwan completed a paper-and-pencil survey. Although parents generally held favorable attitudes toward ASD genetic testing, they had deficient knowledge of such test (with only a 31.4% average correct rate on the actual knowledge scale). Tailored health education materials should be developed to improve the knowledge of ASD genetic testing among parents with affected children in Taiwan. MDPI 2022-01-27 /pmc/articles/PMC8871752/ /pubmed/35205283 http://dx.doi.org/10.3390/genes13020239 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Li, Ming
Zhao, Shi-Xi
Chen, Wei-Ju
Huang, Tse-Yang
Chen, Lei-Shih
Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title_full Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title_fullStr Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title_full_unstemmed Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title_short Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan
title_sort knowledge and attitudes toward genetic testing for autism spectrum disorders among parents of affected children in taiwan
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8871752/
https://www.ncbi.nlm.nih.gov/pubmed/35205283
http://dx.doi.org/10.3390/genes13020239
work_keys_str_mv AT liming knowledgeandattitudestowardgenetictestingforautismspectrumdisordersamongparentsofaffectedchildrenintaiwan
AT zhaoshixi knowledgeandattitudestowardgenetictestingforautismspectrumdisordersamongparentsofaffectedchildrenintaiwan
AT chenweiju knowledgeandattitudestowardgenetictestingforautismspectrumdisordersamongparentsofaffectedchildrenintaiwan
AT huangtseyang knowledgeandattitudestowardgenetictestingforautismspectrumdisordersamongparentsofaffectedchildrenintaiwan
AT chenleishih knowledgeandattitudestowardgenetictestingforautismspectrumdisordersamongparentsofaffectedchildrenintaiwan