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The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries
Genetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decis...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8872395/ https://www.ncbi.nlm.nih.gov/pubmed/35205212 http://dx.doi.org/10.3390/genes13020167 |
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author | Malik, Shaza D. Al-Shafai, Mashael Abdallah, Atiyeh M. |
author_facet | Malik, Shaza D. Al-Shafai, Mashael Abdallah, Atiyeh M. |
author_sort | Malik, Shaza D. |
collection | PubMed |
description | Genetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decisions faced by parents and the factors underlying the complex decision making that must occur when accessing these services in Arab countries. Herein, we performed a narrative review to discuss the reported experiences of parents accessing genetic counseling in the prenatal setting in the 22 Arab countries. We also highlight the different types of decisions encountered and the factors influencing them. We report that: (i) utilization of genetic counseling services varies across different Arab countries; (ii) many factors affect decision making and service utilization, especially religion; and (iii) parents are faced with an array of decisions in the prenatal setting, partly driven by increased utilization of prenatal diagnosis and preimplantation genetic testing in some countries. Our work is the first to highlight the different factors and decisions influencing genetic counseling in Arab countries. Understanding these factors is essential for improving genetic counseling services in the region and helping counselors facilitate informed decision making. |
format | Online Article Text |
id | pubmed-8872395 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-88723952022-02-25 The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries Malik, Shaza D. Al-Shafai, Mashael Abdallah, Atiyeh M. Genes (Basel) Review Genetic counseling services have only recently been introduced in most Arab countries, and their utilization is increasing. Prenatal genetic counseling is essential, particularly in the Arab context, which is characterized by high rates of consanguinity. Nevertheless, little is known about the decisions faced by parents and the factors underlying the complex decision making that must occur when accessing these services in Arab countries. Herein, we performed a narrative review to discuss the reported experiences of parents accessing genetic counseling in the prenatal setting in the 22 Arab countries. We also highlight the different types of decisions encountered and the factors influencing them. We report that: (i) utilization of genetic counseling services varies across different Arab countries; (ii) many factors affect decision making and service utilization, especially religion; and (iii) parents are faced with an array of decisions in the prenatal setting, partly driven by increased utilization of prenatal diagnosis and preimplantation genetic testing in some countries. Our work is the first to highlight the different factors and decisions influencing genetic counseling in Arab countries. Understanding these factors is essential for improving genetic counseling services in the region and helping counselors facilitate informed decision making. MDPI 2022-01-18 /pmc/articles/PMC8872395/ /pubmed/35205212 http://dx.doi.org/10.3390/genes13020167 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Review Malik, Shaza D. Al-Shafai, Mashael Abdallah, Atiyeh M. The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title | The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title_full | The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title_fullStr | The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title_full_unstemmed | The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title_short | The Special Features of Prenatal and Preimplantation Genetic Counseling in Arab Countries |
title_sort | special features of prenatal and preimplantation genetic counseling in arab countries |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8872395/ https://www.ncbi.nlm.nih.gov/pubmed/35205212 http://dx.doi.org/10.3390/genes13020167 |
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