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Ensuring the ethical use of big data: lessons from secure data access
Big data holds great potential for research and for society, large volumes of varied data can be produced and made available to researchers much faster compared to ‘traditional’ data. Whilst this potential is recognized, there are ethical concerns which users of big data must consider. With the volu...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8873544/ https://www.ncbi.nlm.nih.gov/pubmed/35243099 http://dx.doi.org/10.1016/j.heliyon.2022.e08981 |
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author | Wiltshire, Deborah Alvanides, Seraphim |
author_facet | Wiltshire, Deborah Alvanides, Seraphim |
author_sort | Wiltshire, Deborah |
collection | PubMed |
description | Big data holds great potential for research and for society, large volumes of varied data can be produced and made available to researchers much faster compared to ‘traditional’ data. Whilst this potential is recognized, there are ethical concerns which users of big data must consider. With the volume and variety of information in big data, comes a greater risk of disclosure. Researchers and data access services working with highly detailed and sensitive, secure data have grappled with this for many years. The sector has developed both ethical frameworks and statistical disclosure control techniques which could be utilized by those working with big data. We discuss the challenges, present some of the frameworks and techniques and conclude with recommendations for secure data access of big data. |
format | Online Article Text |
id | pubmed-8873544 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-88735442022-03-02 Ensuring the ethical use of big data: lessons from secure data access Wiltshire, Deborah Alvanides, Seraphim Heliyon Research Article Big data holds great potential for research and for society, large volumes of varied data can be produced and made available to researchers much faster compared to ‘traditional’ data. Whilst this potential is recognized, there are ethical concerns which users of big data must consider. With the volume and variety of information in big data, comes a greater risk of disclosure. Researchers and data access services working with highly detailed and sensitive, secure data have grappled with this for many years. The sector has developed both ethical frameworks and statistical disclosure control techniques which could be utilized by those working with big data. We discuss the challenges, present some of the frameworks and techniques and conclude with recommendations for secure data access of big data. Elsevier 2022-02-18 /pmc/articles/PMC8873544/ /pubmed/35243099 http://dx.doi.org/10.1016/j.heliyon.2022.e08981 Text en © 2022 The Author(s) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Research Article Wiltshire, Deborah Alvanides, Seraphim Ensuring the ethical use of big data: lessons from secure data access |
title | Ensuring the ethical use of big data: lessons from secure data access |
title_full | Ensuring the ethical use of big data: lessons from secure data access |
title_fullStr | Ensuring the ethical use of big data: lessons from secure data access |
title_full_unstemmed | Ensuring the ethical use of big data: lessons from secure data access |
title_short | Ensuring the ethical use of big data: lessons from secure data access |
title_sort | ensuring the ethical use of big data: lessons from secure data access |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8873544/ https://www.ncbi.nlm.nih.gov/pubmed/35243099 http://dx.doi.org/10.1016/j.heliyon.2022.e08981 |
work_keys_str_mv | AT wiltshiredeborah ensuringtheethicaluseofbigdatalessonsfromsecuredataaccess AT alvanidesseraphim ensuringtheethicaluseofbigdatalessonsfromsecuredataaccess |