Cargando…

Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

BACKGROUND: Many research studies fail to enroll enough research participants. Patient-facing electronic health record applications, known as patient portals, may be used to send research invitations to eligible patients. OBJECTIVE: The first aim was to determine if receipt of a patient portal resea...

Descripción completa

Detalles Bibliográficos
Autores principales:	Gehtland, Lisa M, Paquin, Ryan S, Andrews, Sara M, Lee, Adam M, Gwaltney, Angela, Duparc, Martin, Pfaff, Emily R, Bailey Jr, Donald B
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2022
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8874929/ https://www.ncbi.nlm.nih.gov/pubmed/35142618 http://dx.doi.org/10.2196/30941

Ejemplares similares

Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study
por: Peay, Holly L., et al.
Publicado: (2022)

Outreach to new mothers through direct mail and email: recruitment in the Early Check research study
por: Paquin, Ryan S., et al.
Publicado: (2021)

Expert Evaluation of Strategies to Modernize Newborn Screening in the United States
por: Bailey, Donald B., et al.
Publicado: (2021)

Early Check: translational science at the intersection of public health and newborn screening
por: Bailey, Donald B., et al.
Publicado: (2019)

A Voluntary Statewide Newborn Screening Pilot for Spinal Muscular Atrophy: Results from Early Check
por: Kucera, Katerina S., et al.
Publicado: (2021)

Improved Dried Blood Spot PCR Assay for Universal Congenital Cytomegalovirus Screening in Newborns
por: Kim, Jean H., et al.
Publicado: (2023)

A Window of Opportunity for Newborn Screening
por: Bailey Jr, Donald B.
Publicado: (2022)

Evaluation of X-Linked Adrenoleukodystrophy Newborn Screening in North Carolina
por: Lee, Stacey, et al.
Publicado: (2020)

Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening
por: Raspa, Melissa, et al.
Publicado: (2023)

Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system
por: Andrews, Sara M., et al.
Publicado: (2022)

Characteristics of Women Enrolled in a Patient Portal Intervention for Menopause
por: Lamba, Avi H., et al.
Publicado: (2020)

Impact of Health Portal Enrollment With Email Reminders on Adherence to Clinic Appointments: A Pilot Study
por: Horvath, Monica, et al.
Publicado: (2011)

Impact of health portal enrolment with email reminders at an academic rheumatology clinic
por: Mendel, Arielle, et al.
Publicado: (2017)

Evaluating parents’ decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol
por: Milko, Laura V., et al.
Publicado: (2018)

Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening
por: Raspa, Melissa, et al.
Publicado: (2020)

Parents of Newborns in the NICU Enrolled in Genome Sequencing Research: Hopeful, but Not Naïve
por: Berrios, Courtney, et al.
Publicado: (2019)

Assessing Alzheimer’s Disease Specific Barriers to Enrollment in an Observational Actigraphy Study
por: Losinski, Genna, et al.
Publicado: (2020)

Pragmatic Clinical Trial of Population Health, Portal-Based Depression Screening: the PORTAL-Depression Study
por: Franco, Melissa I., et al.
Publicado: (2022)

Longitudinal patterns of enrollment and expenditures for a Medicaid cohort
por: Howell, Embry M., et al.
Publicado: (1988)

Improving patient portal enrolment in an academic resident continuity clinic: quality improvement made simple
por: Rhudy, Courtney, et al.
Publicado: (2019)

Differential Effects of Outpatient Portal User Status on Inpatient Portal Use: Observational Study
por: Fareed, Naleef, et al.
Publicado: (2021)

“To enroll or not to enroll”: a qualitative study on preferences for dental insurance in Iran
por: Vahidi, Jamileh, et al.
Publicado: (2022)

Parental Interest in Genomic Sequencing of Newborns: Enrollment Experience from the BabySeq Project
por: Genetti, Casie A., et al.
Publicado: (2018)

In-hospital Enrollment Into an Electronic Patient Portal Results in Improved Follow-up After Orthopedic Surgery: Cluster Randomized Controlled Trial
por: Bhashyam, Abhiram R, et al.
Publicado: (2022)

Frequency of glucose-6-phosphate dehydrogenase deficiency in malaria patients from six African countries enrolled in two randomized anti-malarial clinical trials
por: Carter, Nick, et al.
Publicado: (2011)

Examining mortality among formerly homeless adults enrolled in Housing First: An observational study
por: Henwood, Benjamin F., et al.
Publicado: (2015)

Enroll-HD: An Integrated Clinical Research Platform and Worldwide Observational Study for Huntington's Disease
por: Sathe, Swati, et al.
Publicado: (2021)

The Association of Patient Factors, Digital Access, and Online Behavior on Sustained Patient Portal Use: A Prospective Cohort of Enrolled Users
por: Woods, Susan S, et al.
Publicado: (2017)

Evaluation of the GSP Creatine Kinase-MM Assay and Assessment of CK-MM Stability in Newborn, Patient, and Contrived Dried Blood Spots for Newborn Screening for Duchenne Muscular Dystrophy
por: Migliore, Brooke A., et al.
Publicado: (2022)

Patient Portal Utilization Among Ethnically Diverse Low Income Older Adults: Observational Study
por: Arcury, Thomas A, et al.
Publicado: (2017)

Associations Between Race/Ethnicity, Language, and Enrollment on Cancer Research Studies
por: Ezeoke, Ogochukwu M, et al.
Publicado: (2022)

An Approach to Re-evaluate the Reference Cutoff of the Parameters of Newborn Screening: An Observational Study
por: Patel, Suprava, et al.
Publicado: (2023)

Enrolment characteristics associated with retention among HIV negative Kenyan gay, bisexual and other men who have sex with men enrolled in the Anza Map ema cohort study
por: Kunzweiler, Colin, et al.
Publicado: (2020)

The clinical and economic burden of pneumonia in patients enrolled in Medicare receiving dialysis: a retrospective, observational cohort study
por: Sibbel, Scott, et al.
Publicado: (2016)

Influence of perceived stress on prenatal depression in Surinamese women enrolled in the CCREOH study
por: Gokoel, Anisma R., et al.
Publicado: (2021)

Barriers to enrollment in a randomized controlled trial of hydrocortisone for cardiovascular insufficiency in term and late preterm newborn infants
por: Watterberg, Kristi L., et al.
Publicado: (2017)

Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study
por: Gramling, Robert, et al.
Publicado: (2015)

Evaluating disease control following belimumab treatment in patients with SLE enrolled in the US OBSErve study
por: Hunnicutt, Jacob N, et al.
Publicado: (2022)

Remote enrollment into a telehealth-delivering patient portal: Barriers faced in an urban population during the COVID-19 pandemic
por: Francke, Jordan A., et al.
Publicado: (2021)

Whether or not to enroll, and stay enrolled? A Tanzanian cross-sectional study on voluntary health insurance
por: Kagaigai, Alphoncina, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_08l5l8me2s2dgtc4otc3ipdlkp