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Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders

Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common N...

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Autores principales: Dufour, Brett D., Albores‐Gallo, Lilia, Luna‐Muñoz, Jose, Hagerman, Randi, Miquelajauregui, Amaya, Buriticá, Efrain, Saldarriaga, Wilmar, Pacheco‐Herrero, Mar, Yris Silvestre‐Sosa, Ana, Mazefsky, Carla, Gastgeb, Holly, Kofler, Julia, Casanova, Manuel, Hof, Patrick R., London, Eric, Hagerman, Paul, Martínez‐Cerdeño, Verónica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8877728/
https://www.ncbi.nlm.nih.gov/pubmed/34515386
http://dx.doi.org/10.1111/bpa.13019
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author Dufour, Brett D.
Albores‐Gallo, Lilia
Luna‐Muñoz, Jose
Hagerman, Randi
Miquelajauregui, Amaya
Buriticá, Efrain
Saldarriaga, Wilmar
Pacheco‐Herrero, Mar
Yris Silvestre‐Sosa, Ana
Mazefsky, Carla
Gastgeb, Holly
Kofler, Julia
Casanova, Manuel
Hof, Patrick R.
London, Eric
Hagerman, Paul
Martínez‐Cerdeño, Verónica
author_facet Dufour, Brett D.
Albores‐Gallo, Lilia
Luna‐Muñoz, Jose
Hagerman, Randi
Miquelajauregui, Amaya
Buriticá, Efrain
Saldarriaga, Wilmar
Pacheco‐Herrero, Mar
Yris Silvestre‐Sosa, Ana
Mazefsky, Carla
Gastgeb, Holly
Kofler, Julia
Casanova, Manuel
Hof, Patrick R.
London, Eric
Hagerman, Paul
Martínez‐Cerdeño, Verónica
author_sort Dufour, Brett D.
collection PubMed
description Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common NDDs. Human brain tissue is a scarce resource that is obtained from postmortem donations. In the case of NDDs, specifically autism, the reduced donation rate of brains prevents researchers to investigate its pathology and fine anatomy. The Hispano‐American Brain Bank of Neurodevelopmental Disorders (Banco Hispanoamericano de CErebros de trastornos del NEurodesarrollo) or CENE is a large‐scale brain bank for neurodevelopmental disorders in Hispano‐America and the US. CENE's objectives are to collect and distribute brains of patients with NDDS, with a focus on ASD and FXS, to perform research, promote education of future scientists, and enhance public awareness about the importance of human tissue availability for scientific research on brain function and disease. CENE has thus far established a bilingual system of nodes and teams in several American countries including California‐US, Pennsylvania‐US, México, Puerto Rico, Colombia, and Dominican Republic. CENE ensures that postmortem NDD samples used in research better match the world's genetic and ethnic diversity. CENE enables and expands NDD brain research worldwide, particularly with respect to ASD and FXS.
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spelling pubmed-88777282022-03-01 Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders Dufour, Brett D. Albores‐Gallo, Lilia Luna‐Muñoz, Jose Hagerman, Randi Miquelajauregui, Amaya Buriticá, Efrain Saldarriaga, Wilmar Pacheco‐Herrero, Mar Yris Silvestre‐Sosa, Ana Mazefsky, Carla Gastgeb, Holly Kofler, Julia Casanova, Manuel Hof, Patrick R. London, Eric Hagerman, Paul Martínez‐Cerdeño, Verónica Brain Pathol Letters to the Editor Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common NDDs. Human brain tissue is a scarce resource that is obtained from postmortem donations. In the case of NDDs, specifically autism, the reduced donation rate of brains prevents researchers to investigate its pathology and fine anatomy. The Hispano‐American Brain Bank of Neurodevelopmental Disorders (Banco Hispanoamericano de CErebros de trastornos del NEurodesarrollo) or CENE is a large‐scale brain bank for neurodevelopmental disorders in Hispano‐America and the US. CENE's objectives are to collect and distribute brains of patients with NDDS, with a focus on ASD and FXS, to perform research, promote education of future scientists, and enhance public awareness about the importance of human tissue availability for scientific research on brain function and disease. CENE has thus far established a bilingual system of nodes and teams in several American countries including California‐US, Pennsylvania‐US, México, Puerto Rico, Colombia, and Dominican Republic. CENE ensures that postmortem NDD samples used in research better match the world's genetic and ethnic diversity. CENE enables and expands NDD brain research worldwide, particularly with respect to ASD and FXS. John Wiley and Sons Inc. 2021-09-13 /pmc/articles/PMC8877728/ /pubmed/34515386 http://dx.doi.org/10.1111/bpa.13019 Text en © 2021 The Authors. Brain Pathology published by John Wiley & Sons Ltd on behalf of International Society of Neuropathology https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Letters to the Editor
Dufour, Brett D.
Albores‐Gallo, Lilia
Luna‐Muñoz, Jose
Hagerman, Randi
Miquelajauregui, Amaya
Buriticá, Efrain
Saldarriaga, Wilmar
Pacheco‐Herrero, Mar
Yris Silvestre‐Sosa, Ana
Mazefsky, Carla
Gastgeb, Holly
Kofler, Julia
Casanova, Manuel
Hof, Patrick R.
London, Eric
Hagerman, Paul
Martínez‐Cerdeño, Verónica
Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title_full Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title_fullStr Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title_full_unstemmed Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title_short Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
title_sort hispano‐american brain bank on neurodevelopmental disorders: an initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
topic Letters to the Editor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8877728/
https://www.ncbi.nlm.nih.gov/pubmed/34515386
http://dx.doi.org/10.1111/bpa.13019
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