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Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders
Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common N...
Autores principales: | , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8877728/ https://www.ncbi.nlm.nih.gov/pubmed/34515386 http://dx.doi.org/10.1111/bpa.13019 |
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author | Dufour, Brett D. Albores‐Gallo, Lilia Luna‐Muñoz, Jose Hagerman, Randi Miquelajauregui, Amaya Buriticá, Efrain Saldarriaga, Wilmar Pacheco‐Herrero, Mar Yris Silvestre‐Sosa, Ana Mazefsky, Carla Gastgeb, Holly Kofler, Julia Casanova, Manuel Hof, Patrick R. London, Eric Hagerman, Paul Martínez‐Cerdeño, Verónica |
author_facet | Dufour, Brett D. Albores‐Gallo, Lilia Luna‐Muñoz, Jose Hagerman, Randi Miquelajauregui, Amaya Buriticá, Efrain Saldarriaga, Wilmar Pacheco‐Herrero, Mar Yris Silvestre‐Sosa, Ana Mazefsky, Carla Gastgeb, Holly Kofler, Julia Casanova, Manuel Hof, Patrick R. London, Eric Hagerman, Paul Martínez‐Cerdeño, Verónica |
author_sort | Dufour, Brett D. |
collection | PubMed |
description | Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common NDDs. Human brain tissue is a scarce resource that is obtained from postmortem donations. In the case of NDDs, specifically autism, the reduced donation rate of brains prevents researchers to investigate its pathology and fine anatomy. The Hispano‐American Brain Bank of Neurodevelopmental Disorders (Banco Hispanoamericano de CErebros de trastornos del NEurodesarrollo) or CENE is a large‐scale brain bank for neurodevelopmental disorders in Hispano‐America and the US. CENE's objectives are to collect and distribute brains of patients with NDDS, with a focus on ASD and FXS, to perform research, promote education of future scientists, and enhance public awareness about the importance of human tissue availability for scientific research on brain function and disease. CENE has thus far established a bilingual system of nodes and teams in several American countries including California‐US, Pennsylvania‐US, México, Puerto Rico, Colombia, and Dominican Republic. CENE ensures that postmortem NDD samples used in research better match the world's genetic and ethnic diversity. CENE enables and expands NDD brain research worldwide, particularly with respect to ASD and FXS. |
format | Online Article Text |
id | pubmed-8877728 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-88777282022-03-01 Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders Dufour, Brett D. Albores‐Gallo, Lilia Luna‐Muñoz, Jose Hagerman, Randi Miquelajauregui, Amaya Buriticá, Efrain Saldarriaga, Wilmar Pacheco‐Herrero, Mar Yris Silvestre‐Sosa, Ana Mazefsky, Carla Gastgeb, Holly Kofler, Julia Casanova, Manuel Hof, Patrick R. London, Eric Hagerman, Paul Martínez‐Cerdeño, Verónica Brain Pathol Letters to the Editor Neurodevelopmental disorders (NDDs) are conditions that present with brain dysfunction due to alterations in the processes of brain development. They present with neuropsychiatric, cognitive, and motor symptoms. Autism spectrum disorder (ASD) and Fragile X syndrome (FXS) are two of the most common NDDs. Human brain tissue is a scarce resource that is obtained from postmortem donations. In the case of NDDs, specifically autism, the reduced donation rate of brains prevents researchers to investigate its pathology and fine anatomy. The Hispano‐American Brain Bank of Neurodevelopmental Disorders (Banco Hispanoamericano de CErebros de trastornos del NEurodesarrollo) or CENE is a large‐scale brain bank for neurodevelopmental disorders in Hispano‐America and the US. CENE's objectives are to collect and distribute brains of patients with NDDS, with a focus on ASD and FXS, to perform research, promote education of future scientists, and enhance public awareness about the importance of human tissue availability for scientific research on brain function and disease. CENE has thus far established a bilingual system of nodes and teams in several American countries including California‐US, Pennsylvania‐US, México, Puerto Rico, Colombia, and Dominican Republic. CENE ensures that postmortem NDD samples used in research better match the world's genetic and ethnic diversity. CENE enables and expands NDD brain research worldwide, particularly with respect to ASD and FXS. John Wiley and Sons Inc. 2021-09-13 /pmc/articles/PMC8877728/ /pubmed/34515386 http://dx.doi.org/10.1111/bpa.13019 Text en © 2021 The Authors. Brain Pathology published by John Wiley & Sons Ltd on behalf of International Society of Neuropathology https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Letters to the Editor Dufour, Brett D. Albores‐Gallo, Lilia Luna‐Muñoz, Jose Hagerman, Randi Miquelajauregui, Amaya Buriticá, Efrain Saldarriaga, Wilmar Pacheco‐Herrero, Mar Yris Silvestre‐Sosa, Ana Mazefsky, Carla Gastgeb, Holly Kofler, Julia Casanova, Manuel Hof, Patrick R. London, Eric Hagerman, Paul Martínez‐Cerdeño, Verónica Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title | Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title_full | Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title_fullStr | Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title_full_unstemmed | Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title_short | Hispano‐American Brain Bank on Neurodevelopmental Disorders: An initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
title_sort | hispano‐american brain bank on neurodevelopmental disorders: an initiative to promote brain banking, research, education, and outreach in the field of neurodevelopmental disorders |
topic | Letters to the Editor |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8877728/ https://www.ncbi.nlm.nih.gov/pubmed/34515386 http://dx.doi.org/10.1111/bpa.13019 |
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