Enhancing human aspects of care with young people with muscular dystrophy: An evaluation of a participatory qualitative study with clinicians

PURPOSE: This paper evaluates a study which aimed to enhance clinical care of young people with Duchenne or Becker muscular dystrophy (MD) and their families in two Canadian neuromuscular clinics. We report on how/why the study changed clinical practices in relation to the ‘human’ (e.g., emotional,...

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Detalles Bibliográficos
Autores principales: Setchell, Jenny, Mosleh, Donya, McAdam, Laura, Thille, Patricia, Abrams, Thomas, McMillan, Hugh J., Mistry, Bhavnita, Gibson, Barbara E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8880938/
https://www.ncbi.nlm.nih.gov/pubmed/35213591
http://dx.doi.org/10.1371/journal.pone.0263956

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