COVID-19: Impact on Pediatric Palliative Care

CONTEXT: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemi...

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Detalles Bibliográficos
Autores principales: Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Higginson, Irene, Gao, Wei, Bluebond-Langner, Myra, Farsides, Bobbie, Murtagh, Fliss EM, Fraser, Lorna K, Harding, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. 2022
Materias:
Brief Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8881421/
https://www.ncbi.nlm.nih.gov/pubmed/35231592
http://dx.doi.org/10.1016/j.jpainsymman.2022.02.330
Descripción
Sumario:CONTEXT: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemic and lockdowns on this population. METHODS: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners. RESULTS: COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. CONCLUSION: Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.

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