COVID-19: Impact on Pediatric Palliative Care

CONTEXT: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemi...

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Autores principales: Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Higginson, Irene, Gao, Wei, Bluebond-Langner, Myra, Farsides, Bobbie, Murtagh, Fliss EM, Fraser, Lorna K, Harding, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. 2022
Materias:
Brief Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8881421/
https://www.ncbi.nlm.nih.gov/pubmed/35231592
http://dx.doi.org/10.1016/j.jpainsymman.2022.02.330
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author Scott, Hannah May
Coombes, Lucy
Braybrook, Debbie
Roach, Anna
Harðardóttir, Daney
Bristowe, Katherine
Ellis-Smith, Clare
Higginson, Irene
Gao, Wei
Bluebond-Langner, Myra
Farsides, Bobbie
Murtagh, Fliss EM
Fraser, Lorna K
Harding, Richard
author_facet Scott, Hannah May
Coombes, Lucy
Braybrook, Debbie
Roach, Anna
Harðardóttir, Daney
Bristowe, Katherine
Ellis-Smith, Clare
Higginson, Irene
Gao, Wei
Bluebond-Langner, Myra
Farsides, Bobbie
Murtagh, Fliss EM
Fraser, Lorna K
Harding, Richard
author_sort Scott, Hannah May
collection PubMed
description CONTEXT: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemic and lockdowns on this population. METHODS: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners. RESULTS: COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. CONCLUSION: Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.
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spelling pubmed-88814212022-02-28 COVID-19: Impact on Pediatric Palliative Care Scott, Hannah May Coombes, Lucy Braybrook, Debbie Roach, Anna Harðardóttir, Daney Bristowe, Katherine Ellis-Smith, Clare Higginson, Irene Gao, Wei Bluebond-Langner, Myra Farsides, Bobbie Murtagh, Fliss EM Fraser, Lorna K Harding, Richard J Pain Symptom Manage Brief Report CONTEXT: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. OBJECTIVES: To explore the impact of the COVID-19 pandemic and lockdowns on this population. METHODS: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners. RESULTS: COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. CONCLUSION: Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays. The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. 2022-07 2022-02-26 /pmc/articles/PMC8881421/ /pubmed/35231592 http://dx.doi.org/10.1016/j.jpainsymman.2022.02.330 Text en © 2022 The Authors Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Brief Report
Scott, Hannah May
Coombes, Lucy
Braybrook, Debbie
Roach, Anna
Harðardóttir, Daney
Bristowe, Katherine
Ellis-Smith, Clare
Higginson, Irene
Gao, Wei
Bluebond-Langner, Myra
Farsides, Bobbie
Murtagh, Fliss EM
Fraser, Lorna K
Harding, Richard
COVID-19: Impact on Pediatric Palliative Care
title COVID-19: Impact on Pediatric Palliative Care
title_full COVID-19: Impact on Pediatric Palliative Care
title_fullStr COVID-19: Impact on Pediatric Palliative Care
title_full_unstemmed COVID-19: Impact on Pediatric Palliative Care
title_short COVID-19: Impact on Pediatric Palliative Care
title_sort covid-19: impact on pediatric palliative care
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8881421/
https://www.ncbi.nlm.nih.gov/pubmed/35231592
http://dx.doi.org/10.1016/j.jpainsymman.2022.02.330
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