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Health Problems in Individuals With PWS Are Associated With Lower Quality of Life for Their Parents: A Snapshot in the Brazilian Population

Prader-Willi syndrome (PWS) is a complex genetic disorder requiring interdisciplinary team monitoring and intensive care by parents. So far there is little information on people with PWS in Brazil. Our aim was to describe health problems and treatments used by people with PWS in Brazil and their rel...

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Detalles Bibliográficos
Autores principales: Amaro, Alexandre Slowetzky, Rubin, Daniela Andrea, Teixeira, Maria Cristina Triguero Veloz, Ferreira, Arcenio José, Rodrigues, Graciele Massoli, Carreiro, Luiz Renato Rodrigues
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8885721/
https://www.ncbi.nlm.nih.gov/pubmed/35242723
http://dx.doi.org/10.3389/fped.2022.746311