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Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World

There is a fundamental need to establish the most ethical and effective way of tracking disease in the postpandemic era. The ubiquity of mobile phones is generating large amounts of passive data (collected without active user participation) that can be used as a tool for tracking disease. Although d...

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Detalles Bibliográficos
Autores principales: Kilgallon, John L, Tewarie, Ishaan Ashwini, Broekman, Marike L D, Rana, Aakanksha, Smith, Timothy R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889482/
https://www.ncbi.nlm.nih.gov/pubmed/35166676
http://dx.doi.org/10.2196/30524
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author Kilgallon, John L
Tewarie, Ishaan Ashwini
Broekman, Marike L D
Rana, Aakanksha
Smith, Timothy R
author_facet Kilgallon, John L
Tewarie, Ishaan Ashwini
Broekman, Marike L D
Rana, Aakanksha
Smith, Timothy R
author_sort Kilgallon, John L
collection PubMed
description There is a fundamental need to establish the most ethical and effective way of tracking disease in the postpandemic era. The ubiquity of mobile phones is generating large amounts of passive data (collected without active user participation) that can be used as a tool for tracking disease. Although discussions of pragmatism or economic issues tend to guide public health decisions, ethical issues are the foremost public concern. Thus, officials must look to history and current moral frameworks to avoid past mistakes and ethical pitfalls. Past pandemics demonstrate that the aftermath is the most effective time to make health policy decisions. However, an ethical discussion of passive data use for digital public health surveillance has yet to be attempted, and little has been done to determine the best method to do so. Therefore, we aim to highlight four potential areas of ethical opportunity and challenge: (1) informed consent, (2) privacy, (3) equity, and (4) ownership.
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spelling pubmed-88894822022-03-10 Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World Kilgallon, John L Tewarie, Ishaan Ashwini Broekman, Marike L D Rana, Aakanksha Smith, Timothy R J Med Internet Res Viewpoint There is a fundamental need to establish the most ethical and effective way of tracking disease in the postpandemic era. The ubiquity of mobile phones is generating large amounts of passive data (collected without active user participation) that can be used as a tool for tracking disease. Although discussions of pragmatism or economic issues tend to guide public health decisions, ethical issues are the foremost public concern. Thus, officials must look to history and current moral frameworks to avoid past mistakes and ethical pitfalls. Past pandemics demonstrate that the aftermath is the most effective time to make health policy decisions. However, an ethical discussion of passive data use for digital public health surveillance has yet to be attempted, and little has been done to determine the best method to do so. Therefore, we aim to highlight four potential areas of ethical opportunity and challenge: (1) informed consent, (2) privacy, (3) equity, and (4) ownership. JMIR Publications 2022-02-15 /pmc/articles/PMC8889482/ /pubmed/35166676 http://dx.doi.org/10.2196/30524 Text en ©John L Kilgallon, Ishaan Ashwini Tewarie, Marike L D Broekman, Aakanksha Rana, Timothy R Smith. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 15.02.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Kilgallon, John L
Tewarie, Ishaan Ashwini
Broekman, Marike L D
Rana, Aakanksha
Smith, Timothy R
Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title_full Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title_fullStr Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title_full_unstemmed Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title_short Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
title_sort passive data use for ethical digital public health surveillance in a postpandemic world
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889482/
https://www.ncbi.nlm.nih.gov/pubmed/35166676
http://dx.doi.org/10.2196/30524
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