Addressing the need for patient-friendly medical communications: adaptation of the 2019 recommendations for the management of MPS VI and MPS IVA

BACKGROUND: Patients are the most important stakeholders in the care of any disease and have an educational need to learn about their condition and the treatment they should receive. Considering this need for patient-focused materials, we present a directed approach for mucopolysaccharidosis (MPS) V...

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Detalles Bibliográficos
Autores principales: Bruce, Iain A., Ezgü, Fatih S., Kampmann, Christoph, Kenis, Vladimir, Mackenzie, William, Stevens, Bob, Walker, Robert, Hendriksz, Christian
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889702/
https://www.ncbi.nlm.nih.gov/pubmed/35236367
http://dx.doi.org/10.1186/s13023-022-02219-7

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