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Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan

Acromegaly is a rare condition typically caused by benign pituitary adenomas, resulting in excessive production of growth hormone. Clinical manifestations of acromegaly are diverse, varying from the overgrowth of body tissue to cardiovascular, metabolic, and osteoarticular disorders. Symptoms may em...

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Autores principales: Bolanowski, Marek, Adnan, Zaina, Doknic, Mirjana, Guk, Mykola, Hána, Václav, Ilovayskaya, Irena, Kastelan, Darko, Kocjan, Tomaz, Kužma, Martin, Nurbekova, Akmaral, Poiana, Catalina, Szücs, Nikolette, Vandeva, Silvia, Gomez, Roy, Paidac, Sorin, Simoneau, Damien, Shimon, Ilan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8902495/
https://www.ncbi.nlm.nih.gov/pubmed/35273565
http://dx.doi.org/10.3389/fendo.2022.816426
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author Bolanowski, Marek
Adnan, Zaina
Doknic, Mirjana
Guk, Mykola
Hána, Václav
Ilovayskaya, Irena
Kastelan, Darko
Kocjan, Tomaz
Kužma, Martin
Nurbekova, Akmaral
Poiana, Catalina
Szücs, Nikolette
Vandeva, Silvia
Gomez, Roy
Paidac, Sorin
Simoneau, Damien
Shimon, Ilan
author_facet Bolanowski, Marek
Adnan, Zaina
Doknic, Mirjana
Guk, Mykola
Hána, Václav
Ilovayskaya, Irena
Kastelan, Darko
Kocjan, Tomaz
Kužma, Martin
Nurbekova, Akmaral
Poiana, Catalina
Szücs, Nikolette
Vandeva, Silvia
Gomez, Roy
Paidac, Sorin
Simoneau, Damien
Shimon, Ilan
author_sort Bolanowski, Marek
collection PubMed
description Acromegaly is a rare condition typically caused by benign pituitary adenomas, resulting in excessive production of growth hormone. Clinical manifestations of acromegaly are diverse, varying from the overgrowth of body tissue to cardiovascular, metabolic, and osteoarticular disorders. Symptoms may emerge slowly, overlapping with other diseases and often involve many different healthcare specialists. In the last decade, efforts to provide an accurate and timely diagnosis of acromegaly have improved disease management and clinical experience. Despite this progress, marked differences in the diagnosis, treatment, and management of acromegaly exist from country-to-country. To address these inconsistencies in the region comprising Central and Eastern Europe, Israel, and Kazakhstan, a panel of acromegaly experts from 13 of these countries was convened. Acromegaly experts from each country provided available information on the approaches from their country, including regional treatment centers and multidisciplinary teams, treatment access, reimbursement and availability, and physician education, disease awareness, and patient advocacy. Across several areas of acromegaly management, divergent approaches were identified and discussed, including the provision of multidisciplinary care, approved and available treatments, and disease awareness programs. These were recognized as areas of potential improvement in the management of acromegaly, in addition to participation in national and regional acromegaly registries. Further experience exchange will facilitate the identification of specific strategies that can be adapted in each country, and widespread participation in acromegaly registries will enable their evaluation. It is anticipated that this approach will support the optimization of acromegaly patient care across this region.
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spelling pubmed-89024952022-03-09 Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan Bolanowski, Marek Adnan, Zaina Doknic, Mirjana Guk, Mykola Hána, Václav Ilovayskaya, Irena Kastelan, Darko Kocjan, Tomaz Kužma, Martin Nurbekova, Akmaral Poiana, Catalina Szücs, Nikolette Vandeva, Silvia Gomez, Roy Paidac, Sorin Simoneau, Damien Shimon, Ilan Front Endocrinol (Lausanne) Endocrinology Acromegaly is a rare condition typically caused by benign pituitary adenomas, resulting in excessive production of growth hormone. Clinical manifestations of acromegaly are diverse, varying from the overgrowth of body tissue to cardiovascular, metabolic, and osteoarticular disorders. Symptoms may emerge slowly, overlapping with other diseases and often involve many different healthcare specialists. In the last decade, efforts to provide an accurate and timely diagnosis of acromegaly have improved disease management and clinical experience. Despite this progress, marked differences in the diagnosis, treatment, and management of acromegaly exist from country-to-country. To address these inconsistencies in the region comprising Central and Eastern Europe, Israel, and Kazakhstan, a panel of acromegaly experts from 13 of these countries was convened. Acromegaly experts from each country provided available information on the approaches from their country, including regional treatment centers and multidisciplinary teams, treatment access, reimbursement and availability, and physician education, disease awareness, and patient advocacy. Across several areas of acromegaly management, divergent approaches were identified and discussed, including the provision of multidisciplinary care, approved and available treatments, and disease awareness programs. These were recognized as areas of potential improvement in the management of acromegaly, in addition to participation in national and regional acromegaly registries. Further experience exchange will facilitate the identification of specific strategies that can be adapted in each country, and widespread participation in acromegaly registries will enable their evaluation. It is anticipated that this approach will support the optimization of acromegaly patient care across this region. Frontiers Media S.A. 2022-02-22 /pmc/articles/PMC8902495/ /pubmed/35273565 http://dx.doi.org/10.3389/fendo.2022.816426 Text en Copyright © 2022 Bolanowski, Adnan, Doknic, Guk, Hána, Ilovayskaya, Kastelan, Kocjan, Kužma, Nurbekova, Poiana, Szücs, Vandeva, Gomez, Paidac, Simoneau and Shimon https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Endocrinology
Bolanowski, Marek
Adnan, Zaina
Doknic, Mirjana
Guk, Mykola
Hána, Václav
Ilovayskaya, Irena
Kastelan, Darko
Kocjan, Tomaz
Kužma, Martin
Nurbekova, Akmaral
Poiana, Catalina
Szücs, Nikolette
Vandeva, Silvia
Gomez, Roy
Paidac, Sorin
Simoneau, Damien
Shimon, Ilan
Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title_full Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title_fullStr Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title_full_unstemmed Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title_short Acromegaly: Clinical Care in Central and Eastern Europe, Israel, and Kazakhstan
title_sort acromegaly: clinical care in central and eastern europe, israel, and kazakhstan
topic Endocrinology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8902495/
https://www.ncbi.nlm.nih.gov/pubmed/35273565
http://dx.doi.org/10.3389/fendo.2022.816426
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