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Adaptation and validation of the Caregiver Burden Inventory in eating disorders

BACKGROUND: Living with people diagnosed with a mental disorder is known to increase the risk of developing high levels of so–called “caregiver burden” in informal caregivers. In–depth analysis of this phenomenon and specific assessment tools for caregivers of patients diagnosed with Eating Disorder...

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Autores principales: Bertelli, Sara, Ferrara, Paolo, Di Modica, Sharon, Bergamelli, Emilio, Gambini, Orsola, D’Agostino, Armando, Destrebecq, Anne, Terzoni, Stefano
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903570/
https://www.ncbi.nlm.nih.gov/pubmed/35255998
http://dx.doi.org/10.1186/s40337-022-00560-7
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author Bertelli, Sara
Ferrara, Paolo
Di Modica, Sharon
Bergamelli, Emilio
Gambini, Orsola
D’Agostino, Armando
Destrebecq, Anne
Terzoni, Stefano
author_facet Bertelli, Sara
Ferrara, Paolo
Di Modica, Sharon
Bergamelli, Emilio
Gambini, Orsola
D’Agostino, Armando
Destrebecq, Anne
Terzoni, Stefano
author_sort Bertelli, Sara
collection PubMed
description BACKGROUND: Living with people diagnosed with a mental disorder is known to increase the risk of developing high levels of so–called “caregiver burden” in informal caregivers. In–depth analysis of this phenomenon and specific assessment tools for caregivers of patients diagnosed with Eating Disorders (EDs) are lacking. In this study, we aimed to evaluate the psychometric properties of the Caregiver Burden Inventory in EDs and employ this adapted tool in this category of caregivers. METHODS: A cross–sectional study was conducted in the Eating Disorders outpatient unit of an Italian University hospital. Face and content validity were investigated by calculating standard Content Validity Indices (CVI-I and CVI-S) after administering the Inventory to 6 expert nurses with at least 5 years of experience in mental health services assisting people diagnosed with Eating Disorders. Internal consistency was evaluated with Cronbach’s α coefficient for the overall scale and subscales. An exploratory factor analysis (EFA) was performed to explore latent constructs. The adapted CBI was then administered to 62 informal caregivers of ED patients. RESULTS: The EFA yielded a 5–factor structure. The CVI-S was 97.2%; the Cronbach α coefficient was 0,90 (> 0.74 in each subscale). The median burden level in the experimental population was 40.0 [range = 21 to 54], in a theoretical range from 0 (no burden) to 96 (highest level of burden). CONCLUSION: The Caregiver Burden Inventory appears to be a valid and reliable instrument to assess caregiver burden in individuals diagnosed with Eating Disorders. Further research is needed to evaluate this tool’s efficiency in improving individually tailored interventions on families.
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spelling pubmed-89035702022-03-18 Adaptation and validation of the Caregiver Burden Inventory in eating disorders Bertelli, Sara Ferrara, Paolo Di Modica, Sharon Bergamelli, Emilio Gambini, Orsola D’Agostino, Armando Destrebecq, Anne Terzoni, Stefano J Eat Disord Research Article BACKGROUND: Living with people diagnosed with a mental disorder is known to increase the risk of developing high levels of so–called “caregiver burden” in informal caregivers. In–depth analysis of this phenomenon and specific assessment tools for caregivers of patients diagnosed with Eating Disorders (EDs) are lacking. In this study, we aimed to evaluate the psychometric properties of the Caregiver Burden Inventory in EDs and employ this adapted tool in this category of caregivers. METHODS: A cross–sectional study was conducted in the Eating Disorders outpatient unit of an Italian University hospital. Face and content validity were investigated by calculating standard Content Validity Indices (CVI-I and CVI-S) after administering the Inventory to 6 expert nurses with at least 5 years of experience in mental health services assisting people diagnosed with Eating Disorders. Internal consistency was evaluated with Cronbach’s α coefficient for the overall scale and subscales. An exploratory factor analysis (EFA) was performed to explore latent constructs. The adapted CBI was then administered to 62 informal caregivers of ED patients. RESULTS: The EFA yielded a 5–factor structure. The CVI-S was 97.2%; the Cronbach α coefficient was 0,90 (> 0.74 in each subscale). The median burden level in the experimental population was 40.0 [range = 21 to 54], in a theoretical range from 0 (no burden) to 96 (highest level of burden). CONCLUSION: The Caregiver Burden Inventory appears to be a valid and reliable instrument to assess caregiver burden in individuals diagnosed with Eating Disorders. Further research is needed to evaluate this tool’s efficiency in improving individually tailored interventions on families. BioMed Central 2022-03-07 /pmc/articles/PMC8903570/ /pubmed/35255998 http://dx.doi.org/10.1186/s40337-022-00560-7 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Bertelli, Sara
Ferrara, Paolo
Di Modica, Sharon
Bergamelli, Emilio
Gambini, Orsola
D’Agostino, Armando
Destrebecq, Anne
Terzoni, Stefano
Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title_full Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title_fullStr Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title_full_unstemmed Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title_short Adaptation and validation of the Caregiver Burden Inventory in eating disorders
title_sort adaptation and validation of the caregiver burden inventory in eating disorders
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903570/
https://www.ncbi.nlm.nih.gov/pubmed/35255998
http://dx.doi.org/10.1186/s40337-022-00560-7
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