Cargando…

Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study

Many adolescent young caregivers (AYCs) care for a grandparent (GrP) with chronic disease, especially in countries with no or low developed long-term care systems and/or level of awareness of and policy responses to young caregivers. This mixed-methods study aimed at shedding light on the needs and...

Descripción completa

Detalles Bibliográficos
Autores principales: Santini, Sara, D’Amen, Barbara, Socci, Marco, Di Rosa, Mirko, Hanson, Elizabeth, Hlebec, Valentina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8910623/
https://www.ncbi.nlm.nih.gov/pubmed/35270530
http://dx.doi.org/10.3390/ijerph19052837
_version_ 1784666538062643200
author Santini, Sara
D’Amen, Barbara
Socci, Marco
Di Rosa, Mirko
Hanson, Elizabeth
Hlebec, Valentina
author_facet Santini, Sara
D’Amen, Barbara
Socci, Marco
Di Rosa, Mirko
Hanson, Elizabeth
Hlebec, Valentina
author_sort Santini, Sara
collection PubMed
description Many adolescent young caregivers (AYCs) care for a grandparent (GrP) with chronic disease, especially in countries with no or low developed long-term care systems and/or level of awareness of and policy responses to young caregivers. This mixed-methods study aimed at shedding light on the needs and difficulties faced by a sample of 162 adolescents aged 15–17, caring for GrPs, living in Italy (87) and Slovenia (75), respectively. A multiple linear regression model was built for the quantitative data. Qualitative data were content analysed using an open coding process. Italian and Slovenian respondents reported a moderate amount of caring activity and relatively high positive caregiving outcomes. Nevertheless, one out of three AYCs reported health problems due to their caring responsibilities. Compared to their Italian counterparts, Slovenian respondents were supported to a lesser extent by public services. Italian respondents faced communicative and practical problems; Slovenian AYCs experienced mainly emotional discomfort. AYCs from both countries requested emotional and practical support from formal services and family networks. Further, Slovenian AYCs requested emotional support and a personalized learning plan from schoolteachers. Support measures aimed at training AYCs of GrPs on geriatric care are recommended to address specific issues related to ageing and long-term care needs.
format Online
Article
Text
id pubmed-8910623
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-89106232022-03-11 Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study Santini, Sara D’Amen, Barbara Socci, Marco Di Rosa, Mirko Hanson, Elizabeth Hlebec, Valentina Int J Environ Res Public Health Article Many adolescent young caregivers (AYCs) care for a grandparent (GrP) with chronic disease, especially in countries with no or low developed long-term care systems and/or level of awareness of and policy responses to young caregivers. This mixed-methods study aimed at shedding light on the needs and difficulties faced by a sample of 162 adolescents aged 15–17, caring for GrPs, living in Italy (87) and Slovenia (75), respectively. A multiple linear regression model was built for the quantitative data. Qualitative data were content analysed using an open coding process. Italian and Slovenian respondents reported a moderate amount of caring activity and relatively high positive caregiving outcomes. Nevertheless, one out of three AYCs reported health problems due to their caring responsibilities. Compared to their Italian counterparts, Slovenian respondents were supported to a lesser extent by public services. Italian respondents faced communicative and practical problems; Slovenian AYCs experienced mainly emotional discomfort. AYCs from both countries requested emotional and practical support from formal services and family networks. Further, Slovenian AYCs requested emotional support and a personalized learning plan from schoolteachers. Support measures aimed at training AYCs of GrPs on geriatric care are recommended to address specific issues related to ageing and long-term care needs. MDPI 2022-02-28 /pmc/articles/PMC8910623/ /pubmed/35270530 http://dx.doi.org/10.3390/ijerph19052837 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Santini, Sara
D’Amen, Barbara
Socci, Marco
Di Rosa, Mirko
Hanson, Elizabeth
Hlebec, Valentina
Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title_full Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title_fullStr Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title_full_unstemmed Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title_short Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study
title_sort difficulties and needs of adolescent young caregivers of grandparents in italy and slovenia: a concurrent mixed-methods study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8910623/
https://www.ncbi.nlm.nih.gov/pubmed/35270530
http://dx.doi.org/10.3390/ijerph19052837
work_keys_str_mv AT santinisara difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy
AT damenbarbara difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy
AT soccimarco difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy
AT dirosamirko difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy
AT hansonelizabeth difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy
AT hlebecvalentina difficultiesandneedsofadolescentyoungcaregiversofgrandparentsinitalyandsloveniaaconcurrentmixedmethodsstudy