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Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps

The COVID-19 pandemic has overwhelmed health care systems worldwide, particularly in underresourced communities of color with a high prevalence of pre-existing health conditions. Many state governments and health care entities responded by increasing their capacity for telemedicine and disease track...

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Detalles Bibliográficos
Autores principales: Idris, Muhammed Yassin, Korin, Maya, Araya, Faven, Chowdhury, Sayeeda, Medina, Patty, Cruz, Larissa, Hawkins, Trey-Rashad, Brown, Humberto, Claudio, Luz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8916100/
https://www.ncbi.nlm.nih.gov/pubmed/35113793
http://dx.doi.org/10.2196/30872
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author Idris, Muhammed Yassin
Korin, Maya
Araya, Faven
Chowdhury, Sayeeda
Medina, Patty
Cruz, Larissa
Hawkins, Trey-Rashad
Brown, Humberto
Claudio, Luz
author_facet Idris, Muhammed Yassin
Korin, Maya
Araya, Faven
Chowdhury, Sayeeda
Medina, Patty
Cruz, Larissa
Hawkins, Trey-Rashad
Brown, Humberto
Claudio, Luz
author_sort Idris, Muhammed Yassin
collection PubMed
description The COVID-19 pandemic has overwhelmed health care systems worldwide, particularly in underresourced communities of color with a high prevalence of pre-existing health conditions. Many state governments and health care entities responded by increasing their capacity for telemedicine and disease tracking and creating mobile apps for dissemination of medical information. Our experiences with state-sponsored apps suggest that because many of these eHealth tools did not include community participation, they inadvertently contributed to widening digital health disparities. We propose that, as eHealth tools continue to expand as a form of health care, more attention needs to be given to their equitable distribution, accessibility, and usage. In this viewpoint collaboratively written by a minority-serving community-based organization and an eHealth academic research team, we present our experience participating in a community advisory board working on the dissemination of the COVID Alert NY mobile app to illustrate the importance of public participation in app development. We also provide practical recommendations on how to involve community representatives in the app development process. We propose that transparency and community involvement in the process of app development ultimately increases buy-in, trust, and usage of digital technology in communities where they are needed most.
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spelling pubmed-89161002022-03-12 Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps Idris, Muhammed Yassin Korin, Maya Araya, Faven Chowdhury, Sayeeda Medina, Patty Cruz, Larissa Hawkins, Trey-Rashad Brown, Humberto Claudio, Luz JMIR Mhealth Uhealth Viewpoint The COVID-19 pandemic has overwhelmed health care systems worldwide, particularly in underresourced communities of color with a high prevalence of pre-existing health conditions. Many state governments and health care entities responded by increasing their capacity for telemedicine and disease tracking and creating mobile apps for dissemination of medical information. Our experiences with state-sponsored apps suggest that because many of these eHealth tools did not include community participation, they inadvertently contributed to widening digital health disparities. We propose that, as eHealth tools continue to expand as a form of health care, more attention needs to be given to their equitable distribution, accessibility, and usage. In this viewpoint collaboratively written by a minority-serving community-based organization and an eHealth academic research team, we present our experience participating in a community advisory board working on the dissemination of the COVID Alert NY mobile app to illustrate the importance of public participation in app development. We also provide practical recommendations on how to involve community representatives in the app development process. We propose that transparency and community involvement in the process of app development ultimately increases buy-in, trust, and usage of digital technology in communities where they are needed most. JMIR Publications 2022-03-09 /pmc/articles/PMC8916100/ /pubmed/35113793 http://dx.doi.org/10.2196/30872 Text en ©Muhammed Yassin Idris, Maya Korin, Faven Araya, Sayeeda Chowdhury, Patty Medina, Larissa Cruz, Trey-Rashad Hawkins, Humberto Brown, Luz Claudio. Originally published in JMIR mHealth and uHealth (https://mhealth.jmir.org), 09.03.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR mHealth and uHealth, is properly cited. The complete bibliographic information, a link to the original publication on https://mhealth.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Idris, Muhammed Yassin
Korin, Maya
Araya, Faven
Chowdhury, Sayeeda
Medina, Patty
Cruz, Larissa
Hawkins, Trey-Rashad
Brown, Humberto
Claudio, Luz
Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title_full Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title_fullStr Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title_full_unstemmed Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title_short Including the Public in Public eHealth: The Need for Community Participation in the Development of State-Sponsored COVID-19–Related Mobile Apps
title_sort including the public in public ehealth: the need for community participation in the development of state-sponsored covid-19–related mobile apps
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8916100/
https://www.ncbi.nlm.nih.gov/pubmed/35113793
http://dx.doi.org/10.2196/30872
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