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Applying the Digital Health Social Justice Guide

INTRODUCTION: Digital health, the use of apps, text-messaging, and online interventions, can revolutionize healthcare and make care more equitable. Currently, digital health interventions are often not designed for those who could benefit most and may have unintended consequences. In this paper, we...

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Autores principales: Figueroa, Caroline A., Murayama, Hikari, Amorim, Priscila Carcamo, White, Alison, Quiterio, Ashley, Luo, Tiffany, Aguilera, Adrian, Smith, Angela D. R., Lyles, Courtney R., Robinson, Victoria, von Vacano, Claudia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8918521/
https://www.ncbi.nlm.nih.gov/pubmed/35295620
http://dx.doi.org/10.3389/fdgth.2022.807886
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author Figueroa, Caroline A.
Murayama, Hikari
Amorim, Priscila Carcamo
White, Alison
Quiterio, Ashley
Luo, Tiffany
Aguilera, Adrian
Smith, Angela D. R.
Lyles, Courtney R.
Robinson, Victoria
von Vacano, Claudia
author_facet Figueroa, Caroline A.
Murayama, Hikari
Amorim, Priscila Carcamo
White, Alison
Quiterio, Ashley
Luo, Tiffany
Aguilera, Adrian
Smith, Angela D. R.
Lyles, Courtney R.
Robinson, Victoria
von Vacano, Claudia
author_sort Figueroa, Caroline A.
collection PubMed
description INTRODUCTION: Digital health, the use of apps, text-messaging, and online interventions, can revolutionize healthcare and make care more equitable. Currently, digital health interventions are often not designed for those who could benefit most and may have unintended consequences. In this paper, we explain how privacy vulnerabilities and power imbalances, including racism and sexism, continue to influence health app design and research. We provide guidelines for researchers to design, report and evaluate digital health studies to maximize social justice in health. METHODS: From September 2020 to April 2021, we held five discussion and brainstorming sessions with researchers, students, and community partners to develop the guide and the key questions. We additionally conducted an informal literature review, invited experts to review our guide, and identified examples from our own digital health study and other studies. RESULTS: We identified five overarching topics with key questions and subquestions to guide researchers in designing or evaluating a digital health research study. The overarching topics are: 1. Equitable distribution; 2. Equitable design; 3. Privacy and data return; 4. Stereotype and bias; 5. Structural racism. CONCLUSION: We provide a guide with five key topics and questions for social justice digital health research. Encouraging researchers and practitioners to ask these questions will help to spark a transformation in digital health toward more equitable and ethical research. Future work needs to determine if the quality of studies can improve when researchers use this guide.
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spelling pubmed-89185212022-03-15 Applying the Digital Health Social Justice Guide Figueroa, Caroline A. Murayama, Hikari Amorim, Priscila Carcamo White, Alison Quiterio, Ashley Luo, Tiffany Aguilera, Adrian Smith, Angela D. R. Lyles, Courtney R. Robinson, Victoria von Vacano, Claudia Front Digit Health Digital Health INTRODUCTION: Digital health, the use of apps, text-messaging, and online interventions, can revolutionize healthcare and make care more equitable. Currently, digital health interventions are often not designed for those who could benefit most and may have unintended consequences. In this paper, we explain how privacy vulnerabilities and power imbalances, including racism and sexism, continue to influence health app design and research. We provide guidelines for researchers to design, report and evaluate digital health studies to maximize social justice in health. METHODS: From September 2020 to April 2021, we held five discussion and brainstorming sessions with researchers, students, and community partners to develop the guide and the key questions. We additionally conducted an informal literature review, invited experts to review our guide, and identified examples from our own digital health study and other studies. RESULTS: We identified five overarching topics with key questions and subquestions to guide researchers in designing or evaluating a digital health research study. The overarching topics are: 1. Equitable distribution; 2. Equitable design; 3. Privacy and data return; 4. Stereotype and bias; 5. Structural racism. CONCLUSION: We provide a guide with five key topics and questions for social justice digital health research. Encouraging researchers and practitioners to ask these questions will help to spark a transformation in digital health toward more equitable and ethical research. Future work needs to determine if the quality of studies can improve when researchers use this guide. Frontiers Media S.A. 2022-02-28 /pmc/articles/PMC8918521/ /pubmed/35295620 http://dx.doi.org/10.3389/fdgth.2022.807886 Text en Copyright © 2022 Figueroa, Murayama, Amorim, White, Quiterio, Luo, Aguilera, Smith, Lyles, Robinson and von Vacano. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Digital Health
Figueroa, Caroline A.
Murayama, Hikari
Amorim, Priscila Carcamo
White, Alison
Quiterio, Ashley
Luo, Tiffany
Aguilera, Adrian
Smith, Angela D. R.
Lyles, Courtney R.
Robinson, Victoria
von Vacano, Claudia
Applying the Digital Health Social Justice Guide
title Applying the Digital Health Social Justice Guide
title_full Applying the Digital Health Social Justice Guide
title_fullStr Applying the Digital Health Social Justice Guide
title_full_unstemmed Applying the Digital Health Social Justice Guide
title_short Applying the Digital Health Social Justice Guide
title_sort applying the digital health social justice guide
topic Digital Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8918521/
https://www.ncbi.nlm.nih.gov/pubmed/35295620
http://dx.doi.org/10.3389/fdgth.2022.807886
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