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Psychosocial and financial impacts for carers of those with eating disorders in New Zealand

BACKGROUND: Eating disorders (ED) can have profound effects on family members and carers. These impacts can be experienced across multiple domains and may contribute to the maintenance of ED symptoms. In the absence of any New Zealand studies quantifying this, and given country-specific differences...

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Autores principales: Surgenor, Lois J., Dhakal, Shistata, Watterson, Roma, Lim, Brendan, Kennedy, Martin, Bulik, Cynthia, Wilson, Nicki, Keelan, Karen, Lawson, Rachel, Jordan, Jennifer
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922076/
https://www.ncbi.nlm.nih.gov/pubmed/35292104
http://dx.doi.org/10.1186/s40337-022-00565-2
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author Surgenor, Lois J.
Dhakal, Shistata
Watterson, Roma
Lim, Brendan
Kennedy, Martin
Bulik, Cynthia
Wilson, Nicki
Keelan, Karen
Lawson, Rachel
Jordan, Jennifer
author_facet Surgenor, Lois J.
Dhakal, Shistata
Watterson, Roma
Lim, Brendan
Kennedy, Martin
Bulik, Cynthia
Wilson, Nicki
Keelan, Karen
Lawson, Rachel
Jordan, Jennifer
author_sort Surgenor, Lois J.
collection PubMed
description BACKGROUND: Eating disorders (ED) can have profound effects on family members and carers. These impacts can be experienced across multiple domains and may contribute to the maintenance of ED symptoms. In the absence of any New Zealand studies quantifying this, and given country-specific differences in access to care and treatment, this study explores the psychosocial and economic impacts on those caring for someone with an ED in New Zealand. METHODS: Carers (N = 121) of those who had, or still had, a self-reported ED (82.6% anorexia nervosa) completed an online survey open between December 2016 and October 2020, adapted to the New Zealand context. Questions addressed ED recency and recovery status of the individual cared for, treatment access, and the financial and psychosocial impact on the carer. Data analysis included descriptive statistics, with financial cost data converted to the equivalent of 2020 New Zealand dollars. RESULTS: Most (88.6%) recruited carers reported still caring for someone with ED symptoms of varying severity. A majority reported difficulty accessing treatment for the person they cared for, with a sizable minority (45%) paying for private treatment, despite few having private insurance. Carer losses typically included reduced income and productivity, travel costs, and other miscellaneous costs. Carers reported significant psychosocial impacts across a range of dimensions including family life, interpersonal relationships, and their own personal well-being. CONCLUSIONS: Carers in New Zealand report impacts which are far reaching and longstanding, covering their own personal and interpersonal well-being and that of those around them. While most of those they care for get access to public (free) treatment at some time or another, the wider financial and economic impacts on carers are significant, and likely to take years to recoup. Though not unique to EDs, interventions and supports for carers are much needed in New Zealand, alongside more comprehensive research methodology to further determine positive and other impacts of EDs over the long course of the caregiving role. HIGHLIGHTS: A majority reported difficulty accessing treatment for the person they cared for 45% paid for private treatment, despite few having private insurance. Carers reported reduced income and productivity, travel costs, and other costs. Carers reported significant psychosocial impacts on family life, interpersonal relationships, and their own personal well-being. Carers provide a pivotal role in supporting treatment and recovery in their family member with the. These findings will be relevant for funders and service providers in developing further approaches to address barriers and gaps in service provision to reduce impacts on carers, and as a result, those with eating disorders.
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spelling pubmed-89220762022-03-15 Psychosocial and financial impacts for carers of those with eating disorders in New Zealand Surgenor, Lois J. Dhakal, Shistata Watterson, Roma Lim, Brendan Kennedy, Martin Bulik, Cynthia Wilson, Nicki Keelan, Karen Lawson, Rachel Jordan, Jennifer J Eat Disord Research BACKGROUND: Eating disorders (ED) can have profound effects on family members and carers. These impacts can be experienced across multiple domains and may contribute to the maintenance of ED symptoms. In the absence of any New Zealand studies quantifying this, and given country-specific differences in access to care and treatment, this study explores the psychosocial and economic impacts on those caring for someone with an ED in New Zealand. METHODS: Carers (N = 121) of those who had, or still had, a self-reported ED (82.6% anorexia nervosa) completed an online survey open between December 2016 and October 2020, adapted to the New Zealand context. Questions addressed ED recency and recovery status of the individual cared for, treatment access, and the financial and psychosocial impact on the carer. Data analysis included descriptive statistics, with financial cost data converted to the equivalent of 2020 New Zealand dollars. RESULTS: Most (88.6%) recruited carers reported still caring for someone with ED symptoms of varying severity. A majority reported difficulty accessing treatment for the person they cared for, with a sizable minority (45%) paying for private treatment, despite few having private insurance. Carer losses typically included reduced income and productivity, travel costs, and other miscellaneous costs. Carers reported significant psychosocial impacts across a range of dimensions including family life, interpersonal relationships, and their own personal well-being. CONCLUSIONS: Carers in New Zealand report impacts which are far reaching and longstanding, covering their own personal and interpersonal well-being and that of those around them. While most of those they care for get access to public (free) treatment at some time or another, the wider financial and economic impacts on carers are significant, and likely to take years to recoup. Though not unique to EDs, interventions and supports for carers are much needed in New Zealand, alongside more comprehensive research methodology to further determine positive and other impacts of EDs over the long course of the caregiving role. HIGHLIGHTS: A majority reported difficulty accessing treatment for the person they cared for 45% paid for private treatment, despite few having private insurance. Carers reported reduced income and productivity, travel costs, and other costs. Carers reported significant psychosocial impacts on family life, interpersonal relationships, and their own personal well-being. Carers provide a pivotal role in supporting treatment and recovery in their family member with the. These findings will be relevant for funders and service providers in developing further approaches to address barriers and gaps in service provision to reduce impacts on carers, and as a result, those with eating disorders. BioMed Central 2022-03-15 /pmc/articles/PMC8922076/ /pubmed/35292104 http://dx.doi.org/10.1186/s40337-022-00565-2 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Surgenor, Lois J.
Dhakal, Shistata
Watterson, Roma
Lim, Brendan
Kennedy, Martin
Bulik, Cynthia
Wilson, Nicki
Keelan, Karen
Lawson, Rachel
Jordan, Jennifer
Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title_full Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title_fullStr Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title_full_unstemmed Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title_short Psychosocial and financial impacts for carers of those with eating disorders in New Zealand
title_sort psychosocial and financial impacts for carers of those with eating disorders in new zealand
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922076/
https://www.ncbi.nlm.nih.gov/pubmed/35292104
http://dx.doi.org/10.1186/s40337-022-00565-2
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