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“Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest

INTRODUCTION: The process of identifying and connecting with clinical trial study teams can be challenging and difficult for members of the public. The national volunteer community registry, ResearchMatch, and the public clinical trials search tool, Trials Today, work in tandem to bridge this connec...

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Detalles Bibliográficos
Autores principales: Dunkel, Leah, Byrne, Loretta M., Olson, Erik, Russell, Michael, Tan, Jason, Phillips, Kaysi, Wilkins, Consuelo H., Harris, Paul A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922290/
https://www.ncbi.nlm.nih.gov/pubmed/35321223
http://dx.doi.org/10.1017/cts.2022.19
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author Dunkel, Leah
Byrne, Loretta M.
Olson, Erik
Russell, Michael
Tan, Jason
Phillips, Kaysi
Wilkins, Consuelo H.
Harris, Paul A.
author_facet Dunkel, Leah
Byrne, Loretta M.
Olson, Erik
Russell, Michael
Tan, Jason
Phillips, Kaysi
Wilkins, Consuelo H.
Harris, Paul A.
author_sort Dunkel, Leah
collection PubMed
description INTRODUCTION: The process of identifying and connecting with clinical trial study teams can be challenging and difficult for members of the public. The national volunteer community registry, ResearchMatch, and the public clinical trials search tool, Trials Today, work in tandem to bridge this connection by providing a streamlined process for potential participants to identify clinical trials which may be of interest. METHODS: Building on the existing infrastructure of ResearchMatch and Trials Today, we created a mechanism by which the public can request that their basic contact information (e.g., email/phone) be securely shared with any actively recruiting clinical trial, including trials with no existing relationship with ResearchMatch. RESULTS: Within the first 2 years of use (July 2019–July 2021), ResearchMatch Volunteers sent 12,251 requests to study teams. On average, 20% of these requests were accepted by the study teams. CONCLUSIONS: The utilization of this tool indicates that there is active interest among members of the public to independently contact study teams about trials of interest. Additionally, research teams unaffiliated with ResearchMatch are willing to at minimum accept contact information. This allows ResearchMatch to successfully serve as a medium, connecting members of the public with actively recruiting trials.
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spelling pubmed-89222902022-03-22 “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest Dunkel, Leah Byrne, Loretta M. Olson, Erik Russell, Michael Tan, Jason Phillips, Kaysi Wilkins, Consuelo H. Harris, Paul A. J Clin Transl Sci Research Article INTRODUCTION: The process of identifying and connecting with clinical trial study teams can be challenging and difficult for members of the public. The national volunteer community registry, ResearchMatch, and the public clinical trials search tool, Trials Today, work in tandem to bridge this connection by providing a streamlined process for potential participants to identify clinical trials which may be of interest. METHODS: Building on the existing infrastructure of ResearchMatch and Trials Today, we created a mechanism by which the public can request that their basic contact information (e.g., email/phone) be securely shared with any actively recruiting clinical trial, including trials with no existing relationship with ResearchMatch. RESULTS: Within the first 2 years of use (July 2019–July 2021), ResearchMatch Volunteers sent 12,251 requests to study teams. On average, 20% of these requests were accepted by the study teams. CONCLUSIONS: The utilization of this tool indicates that there is active interest among members of the public to independently contact study teams about trials of interest. Additionally, research teams unaffiliated with ResearchMatch are willing to at minimum accept contact information. This allows ResearchMatch to successfully serve as a medium, connecting members of the public with actively recruiting trials. Cambridge University Press 2022-02-11 /pmc/articles/PMC8922290/ /pubmed/35321223 http://dx.doi.org/10.1017/cts.2022.19 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Dunkel, Leah
Byrne, Loretta M.
Olson, Erik
Russell, Michael
Tan, Jason
Phillips, Kaysi
Wilkins, Consuelo H.
Harris, Paul A.
“Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title_full “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title_fullStr “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title_full_unstemmed “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title_short “Send My Information”: Increasing public accessibility to clinical trials by facilitating participant expression of interest
title_sort “send my information”: increasing public accessibility to clinical trials by facilitating participant expression of interest
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922290/
https://www.ncbi.nlm.nih.gov/pubmed/35321223
http://dx.doi.org/10.1017/cts.2022.19
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