User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study

BACKGROUND: The Patient-Reported Outcomes, Burdens, and Experiences (PROBE) questionnaire is a tool for assessing the quality of life and disease burden in people living with hemophilia. OBJECTIVE: The objectives of our study were (1) to assess the needs of relevant stakeholders involved in the use...

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Detalles Bibliográficos
Autores principales: Germini, Federico, Borg Debono, Victoria, Page, David, Zuk, Victoria, Kucher, Alexandra, Cotoi, Chris, Hobson, Nicholas, Sevestre, Michael, Skinner, Mark W, Iorio, Alfonso
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8928049/
https://www.ncbi.nlm.nih.gov/pubmed/35234648
http://dx.doi.org/10.2196/30797

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