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Rare Disease Registries Are Key to Evidence-Based Personalized Medicine: Highlighting the European Experience
Rare diseases, such as inherited metabolic diseases, have been identified as a health priority within the European Union more than 20 years ago and have become an integral part of EU health programs and European Reference Networks. Having the potential to pool data, to achieve sufficient sample size...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Frontiers Media S.A.
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8934440/ https://www.ncbi.nlm.nih.gov/pubmed/35317224 http://dx.doi.org/10.3389/fendo.2022.832063 |