Cargando…

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences

The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on interv...

Descripción completa

Detalles Bibliográficos
Autores principales: Micai, Martina, Ciaramella, Antonio, Salvitti, Tommaso, Fulceri, Francesca, Fatta, Laura Maria, Poustka, Luise, Diehm, Robert, Iskrov, Georgi, Stefanov, Rumen, Guillon, Quentin, Rogé, Bernadette, Staines, Anthony, Sweeney, Mary Rose, Boilson, Andrew Martin, Leósdóttir, Thora, Saemundsen, Evald, Moilanen, Irma, Ebeling, Hanna, Yliherva, Anneli, Gissler, Mika, Parviainen, Tarja, Tani, Pekka, Kawa, Rafal, Vicente, Astrid, Rasga, Célia, Budişteanu, Magdalena, Dale, Ian, Povey, Carol, Flores, Noelia, Jenaro, Cristina, Monroy, Maria Luisa, Primo, Patricia García, Charman, Tony, Cramer, Susanne, Warberg, Christine Kloster, Canal-Bedia, Ricardo, Posada, Manuel, Scattoni, Maria Luisa, Schendel, Diana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8938388/
https://www.ncbi.nlm.nih.gov/pubmed/33966137
http://dx.doi.org/10.1007/s10803-021-05038-0
_version_ 1784672543008882688
author Micai, Martina
Ciaramella, Antonio
Salvitti, Tommaso
Fulceri, Francesca
Fatta, Laura Maria
Poustka, Luise
Diehm, Robert
Iskrov, Georgi
Stefanov, Rumen
Guillon, Quentin
Rogé, Bernadette
Staines, Anthony
Sweeney, Mary Rose
Boilson, Andrew Martin
Leósdóttir, Thora
Saemundsen, Evald
Moilanen, Irma
Ebeling, Hanna
Yliherva, Anneli
Gissler, Mika
Parviainen, Tarja
Tani, Pekka
Kawa, Rafal
Vicente, Astrid
Rasga, Célia
Budişteanu, Magdalena
Dale, Ian
Povey, Carol
Flores, Noelia
Jenaro, Cristina
Monroy, Maria Luisa
Primo, Patricia García
Charman, Tony
Cramer, Susanne
Warberg, Christine Kloster
Canal-Bedia, Ricardo
Posada, Manuel
Scattoni, Maria Luisa
Schendel, Diana
author_facet Micai, Martina
Ciaramella, Antonio
Salvitti, Tommaso
Fulceri, Francesca
Fatta, Laura Maria
Poustka, Luise
Diehm, Robert
Iskrov, Georgi
Stefanov, Rumen
Guillon, Quentin
Rogé, Bernadette
Staines, Anthony
Sweeney, Mary Rose
Boilson, Andrew Martin
Leósdóttir, Thora
Saemundsen, Evald
Moilanen, Irma
Ebeling, Hanna
Yliherva, Anneli
Gissler, Mika
Parviainen, Tarja
Tani, Pekka
Kawa, Rafal
Vicente, Astrid
Rasga, Célia
Budişteanu, Magdalena
Dale, Ian
Povey, Carol
Flores, Noelia
Jenaro, Cristina
Monroy, Maria Luisa
Primo, Patricia García
Charman, Tony
Cramer, Susanne
Warberg, Christine Kloster
Canal-Bedia, Ricardo
Posada, Manuel
Scattoni, Maria Luisa
Schendel, Diana
author_sort Micai, Martina
collection PubMed
description The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05038-0.
format Online
Article
Text
id pubmed-8938388
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Springer US
record_format MEDLINE/PubMed
spelling pubmed-89383882022-04-07 Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences Micai, Martina Ciaramella, Antonio Salvitti, Tommaso Fulceri, Francesca Fatta, Laura Maria Poustka, Luise Diehm, Robert Iskrov, Georgi Stefanov, Rumen Guillon, Quentin Rogé, Bernadette Staines, Anthony Sweeney, Mary Rose Boilson, Andrew Martin Leósdóttir, Thora Saemundsen, Evald Moilanen, Irma Ebeling, Hanna Yliherva, Anneli Gissler, Mika Parviainen, Tarja Tani, Pekka Kawa, Rafal Vicente, Astrid Rasga, Célia Budişteanu, Magdalena Dale, Ian Povey, Carol Flores, Noelia Jenaro, Cristina Monroy, Maria Luisa Primo, Patricia García Charman, Tony Cramer, Susanne Warberg, Christine Kloster Canal-Bedia, Ricardo Posada, Manuel Scattoni, Maria Luisa Schendel, Diana J Autism Dev Disord Original Paper The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05038-0. Springer US 2021-05-08 2022 /pmc/articles/PMC8938388/ /pubmed/33966137 http://dx.doi.org/10.1007/s10803-021-05038-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Paper
Micai, Martina
Ciaramella, Antonio
Salvitti, Tommaso
Fulceri, Francesca
Fatta, Laura Maria
Poustka, Luise
Diehm, Robert
Iskrov, Georgi
Stefanov, Rumen
Guillon, Quentin
Rogé, Bernadette
Staines, Anthony
Sweeney, Mary Rose
Boilson, Andrew Martin
Leósdóttir, Thora
Saemundsen, Evald
Moilanen, Irma
Ebeling, Hanna
Yliherva, Anneli
Gissler, Mika
Parviainen, Tarja
Tani, Pekka
Kawa, Rafal
Vicente, Astrid
Rasga, Célia
Budişteanu, Magdalena
Dale, Ian
Povey, Carol
Flores, Noelia
Jenaro, Cristina
Monroy, Maria Luisa
Primo, Patricia García
Charman, Tony
Cramer, Susanne
Warberg, Christine Kloster
Canal-Bedia, Ricardo
Posada, Manuel
Scattoni, Maria Luisa
Schendel, Diana
Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title_full Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title_fullStr Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title_full_unstemmed Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title_short Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
title_sort intervention services for autistic adults: an asdeu study of autistic adults, carers, and professionals’ experiences
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8938388/
https://www.ncbi.nlm.nih.gov/pubmed/33966137
http://dx.doi.org/10.1007/s10803-021-05038-0
work_keys_str_mv AT micaimartina interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT ciaramellaantonio interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT salvittitommaso interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT fulcerifrancesca interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT fattalauramaria interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT poustkaluise interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT diehmrobert interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT iskrovgeorgi interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT stefanovrumen interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT guillonquentin interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT rogebernadette interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT stainesanthony interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT sweeneymaryrose interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT boilsonandrewmartin interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT leosdottirthora interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT saemundsenevald interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT moilanenirma interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT ebelinghanna interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT ylihervaanneli interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT gisslermika interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT parviainentarja interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT tanipekka interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT kawarafal interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT vicenteastrid interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT rasgacelia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT budisteanumagdalena interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT daleian interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT poveycarol interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT floresnoelia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT jenarocristina interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT monroymarialuisa interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT primopatriciagarcia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT charmantony interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT cramersusanne interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT warbergchristinekloster interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT canalbediaricardo interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT posadamanuel interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT scattonimarialuisa interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences
AT schendeldiana interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences