Cargando…
Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on interv...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8938388/ https://www.ncbi.nlm.nih.gov/pubmed/33966137 http://dx.doi.org/10.1007/s10803-021-05038-0 |
_version_ | 1784672543008882688 |
---|---|
author | Micai, Martina Ciaramella, Antonio Salvitti, Tommaso Fulceri, Francesca Fatta, Laura Maria Poustka, Luise Diehm, Robert Iskrov, Georgi Stefanov, Rumen Guillon, Quentin Rogé, Bernadette Staines, Anthony Sweeney, Mary Rose Boilson, Andrew Martin Leósdóttir, Thora Saemundsen, Evald Moilanen, Irma Ebeling, Hanna Yliherva, Anneli Gissler, Mika Parviainen, Tarja Tani, Pekka Kawa, Rafal Vicente, Astrid Rasga, Célia Budişteanu, Magdalena Dale, Ian Povey, Carol Flores, Noelia Jenaro, Cristina Monroy, Maria Luisa Primo, Patricia García Charman, Tony Cramer, Susanne Warberg, Christine Kloster Canal-Bedia, Ricardo Posada, Manuel Scattoni, Maria Luisa Schendel, Diana |
author_facet | Micai, Martina Ciaramella, Antonio Salvitti, Tommaso Fulceri, Francesca Fatta, Laura Maria Poustka, Luise Diehm, Robert Iskrov, Georgi Stefanov, Rumen Guillon, Quentin Rogé, Bernadette Staines, Anthony Sweeney, Mary Rose Boilson, Andrew Martin Leósdóttir, Thora Saemundsen, Evald Moilanen, Irma Ebeling, Hanna Yliherva, Anneli Gissler, Mika Parviainen, Tarja Tani, Pekka Kawa, Rafal Vicente, Astrid Rasga, Célia Budişteanu, Magdalena Dale, Ian Povey, Carol Flores, Noelia Jenaro, Cristina Monroy, Maria Luisa Primo, Patricia García Charman, Tony Cramer, Susanne Warberg, Christine Kloster Canal-Bedia, Ricardo Posada, Manuel Scattoni, Maria Luisa Schendel, Diana |
author_sort | Micai, Martina |
collection | PubMed |
description | The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05038-0. |
format | Online Article Text |
id | pubmed-8938388 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer US |
record_format | MEDLINE/PubMed |
spelling | pubmed-89383882022-04-07 Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences Micai, Martina Ciaramella, Antonio Salvitti, Tommaso Fulceri, Francesca Fatta, Laura Maria Poustka, Luise Diehm, Robert Iskrov, Georgi Stefanov, Rumen Guillon, Quentin Rogé, Bernadette Staines, Anthony Sweeney, Mary Rose Boilson, Andrew Martin Leósdóttir, Thora Saemundsen, Evald Moilanen, Irma Ebeling, Hanna Yliherva, Anneli Gissler, Mika Parviainen, Tarja Tani, Pekka Kawa, Rafal Vicente, Astrid Rasga, Célia Budişteanu, Magdalena Dale, Ian Povey, Carol Flores, Noelia Jenaro, Cristina Monroy, Maria Luisa Primo, Patricia García Charman, Tony Cramer, Susanne Warberg, Christine Kloster Canal-Bedia, Ricardo Posada, Manuel Scattoni, Maria Luisa Schendel, Diana J Autism Dev Disord Original Paper The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05038-0. Springer US 2021-05-08 2022 /pmc/articles/PMC8938388/ /pubmed/33966137 http://dx.doi.org/10.1007/s10803-021-05038-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Original Paper Micai, Martina Ciaramella, Antonio Salvitti, Tommaso Fulceri, Francesca Fatta, Laura Maria Poustka, Luise Diehm, Robert Iskrov, Georgi Stefanov, Rumen Guillon, Quentin Rogé, Bernadette Staines, Anthony Sweeney, Mary Rose Boilson, Andrew Martin Leósdóttir, Thora Saemundsen, Evald Moilanen, Irma Ebeling, Hanna Yliherva, Anneli Gissler, Mika Parviainen, Tarja Tani, Pekka Kawa, Rafal Vicente, Astrid Rasga, Célia Budişteanu, Magdalena Dale, Ian Povey, Carol Flores, Noelia Jenaro, Cristina Monroy, Maria Luisa Primo, Patricia García Charman, Tony Cramer, Susanne Warberg, Christine Kloster Canal-Bedia, Ricardo Posada, Manuel Scattoni, Maria Luisa Schendel, Diana Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title | Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title_full | Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title_fullStr | Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title_full_unstemmed | Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title_short | Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences |
title_sort | intervention services for autistic adults: an asdeu study of autistic adults, carers, and professionals’ experiences |
topic | Original Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8938388/ https://www.ncbi.nlm.nih.gov/pubmed/33966137 http://dx.doi.org/10.1007/s10803-021-05038-0 |
work_keys_str_mv | AT micaimartina interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT ciaramellaantonio interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT salvittitommaso interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT fulcerifrancesca interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT fattalauramaria interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT poustkaluise interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT diehmrobert interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT iskrovgeorgi interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT stefanovrumen interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT guillonquentin interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT rogebernadette interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT stainesanthony interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT sweeneymaryrose interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT boilsonandrewmartin interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT leosdottirthora interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT saemundsenevald interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT moilanenirma interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT ebelinghanna interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT ylihervaanneli interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT gisslermika interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT parviainentarja interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT tanipekka interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT kawarafal interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT vicenteastrid interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT rasgacelia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT budisteanumagdalena interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT daleian interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT poveycarol interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT floresnoelia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT jenarocristina interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT monroymarialuisa interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT primopatriciagarcia interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT charmantony interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT cramersusanne interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT warbergchristinekloster interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT canalbediaricardo interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT posadamanuel interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT scattonimarialuisa interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences AT schendeldiana interventionservicesforautisticadultsanasdeustudyofautisticadultscarersandprofessionalsexperiences |