Cargando…

Perspectives of individuals with sickle cell disease on barriers to care

INTRODUCTION: Sickle cell disease (SCD) is an inherited hemoglobinopathy that predominantly affects African Americans in the United States. The disease is associated with complications leading to high healthcare utilization rates, including emergency department (ED) visits and hospitalizations. Opti...

Descripción completa

Detalles Bibliográficos
Autores principales:	Phillips, Shannon, Chen, Yumei, Masese, Rita, Noisette, Laurence, Jordan, Kasey, Jacobs, Sara, Hsu, Lewis L., Melvin, Cathy L., Treadwell, Marsha, Shah, Nirmish, Tanabe, Paula, Kanter, Julie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2022
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8942270/ https://www.ncbi.nlm.nih.gov/pubmed/35320302 http://dx.doi.org/10.1371/journal.pone.0265342

Ejemplares similares

Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium
por: Masese, Rita V., et al.
Publicado: (2021)

Barriers and facilitators to care for individuals with sickle cell disease in central North Carolina: The emergency department providers’ perspective
por: Masese, Rita Vanessa, et al.
Publicado: (2019)

What does it mean to be affiliated with care?: Delphi consensus on the definition of “unaffiliation” and “specialist” in sickle cell disease
por: Lamont, Andrea E., et al.
Publicado: (2022)

Barriers to Pediatric Sickle Cell Disease Guideline Recommendations
por: Cabana, Michael D., et al.
Publicado: (2019)

Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
por: Kanter, Julie, et al.
Publicado: (2020)

Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease
por: Harris, Kelly M., et al.
Publicado: (2023)

Identified barriers and facilitators to stroke risk screening in children with sickle cell anemia: results from the DISPLACE consortium
por: Phillips, Shannon M., et al.
Publicado: (2021)

Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)
por: Masese, Rita V., et al.
Publicado: (2020)

Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease
por: Howell, Kristen E., et al.
Publicado: (2023)

An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model
por: Treadwell, Marsha J., et al.
Publicado: (2022)

Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA
por: Smeltzer, Matthew P, et al.
Publicado: (2021)

Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study
por: Hankins, Jane S, et al.
Publicado: (2020)

Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry
por: Glassberg, Jeffrey A., et al.
Publicado: (2020)

Sickle Cell Disease Related Outcomes in Patients Evaluated for COVID-19 Infections in South Carolina
por: Noisette, Laurence, et al.
Publicado: (2020)

Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠
por: Keller, San, et al.
Publicado: (2017)

“The project did not come to us with a solution”: Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease
por: Baumann, Ana A., et al.
Publicado: (2023)

Awareness and Use of the Sickle Cell Disease Toolbox by Primary Care Providers in North Carolina
por: Ibemere, Stephanie O., et al.
Publicado: (2021)

Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative
por: Treadwell, Marsha J., et al.
Publicado: (2022)

Sickle cell disease is a global prototype for integrative research and healthcare
por: Royal, Charmaine D. M., et al.
Publicado: (2021)

Pharmacokinetics, pharmacodynamics, safety, and efficacy of crizanlizumab in patients with sickle cell disease
por: Kanter, Julie, et al.
Publicado: (2022)

Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks
por: Keller, San D, et al.
Publicado: (2014)

Sickle cell disease complications: Prevalence and resource utilization
por: Shah, Nirmish, et al.
Publicado: (2019)

P-080: IMPLEMENTATION OF SCREENING TOOL IN SICKLE CELL CLINIC TO IDENTIFY SOCIAL DETERMINANTS OF HEALTH
por: J., PATEL, et al.
Publicado: (2022)

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings
por: Strunk, Crawford, et al.
Publicado: (2020)

Development of a Severity Classification System for Sickle Cell Disease
por: Shah, Nirmish, et al.
Publicado: (2020)

Voxelotor: alteration of sickle cell disease pathophysiology by a first-in-class polymerization inhibitor
por: Glaros, Alexander K., et al.
Publicado: (2021)

Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients
por: Wonkam, Ambroise, et al.
Publicado: (2015)

Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care
por: Evensen, Christian T., et al.
Publicado: (2016)

CureSCi Metadata Catalog–Making sickle cell studies findable
por: Pan, Huaqin, et al.
Publicado: (2022)

Medical Resource Use and Costs of Treating Sickle Cell-related Vaso-occlusive Crisis Episodes: A Retrospective Claims Study
por: Shah, Nirmish, et al.
Publicado: (2020)

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry
por: Munung, Nchangwi Syntia, et al.
Publicado: (2022)

Motivators and Barriers to Physical Activity among Youth with Sickle Cell Disease: Brief Review
por: Olorunyomi, Olalekan Olatokunbo, et al.
Publicado: (2022)

PB2504: USE OF CONSUMER WEARABLES TO MONITOR AND PREDICT PAIN IN PATIENTS WITH SICKLE CELL DISEASE
por: Vuong, Caroline, et al.
Publicado: (2023)

Dissemination of Evidence-Based Recommendations for Sickle Cell Disease to Primary Care and Emergency Department Providers in North Carolina: A Cost Benefit Analysis
por: Tanabe, Paula, et al.
Publicado: (2021)

Can subjective pain be inferred from objective physiological data? Evidence from patients with sickle cell disease
por: Panaggio, Mark J., et al.
Publicado: (2021)

Improving Pain Assessment Using Vital Signs and Pain Medication for Patients With Sickle Cell Disease: Retrospective Study
por: Padhee, Swati, et al.
Publicado: (2022)

Electronic Health Record–Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study
por: Luo, Lingzi, et al.
Publicado: (2021)

Use of consumer wearables to monitor and predict pain in patients with sickle cell disease
por: Vuong, Caroline, et al.
Publicado: (2023)

Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study
por: Cronin, Robert M., et al.
Publicado: (2019)

Crizanlizumab and comparators for adults with sickle cell disease: a systematic review and network meta-analysis
por: Thom, Howard, et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_flt4obo1kuqes4r31tt4ick230