A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome

Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inf...

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Autores principales: Duarte, Elysângela Dittz, Braga, Patrícia P., Guimarães, Bárbara R., da Silva, Juliana B., Caldeira, Sílvia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8951540/
https://www.ncbi.nlm.nih.gov/pubmed/35327024
http://dx.doi.org/10.3390/healthcare10030546
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author Duarte, Elysângela Dittz
Braga, Patrícia P.
Guimarães, Bárbara R.
da Silva, Juliana B.
Caldeira, Sílvia
author_facet Duarte, Elysângela Dittz
Braga, Patrícia P.
Guimarães, Bárbara R.
da Silva, Juliana B.
Caldeira, Sílvia
author_sort Duarte, Elysângela Dittz
collection PubMed
description Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents’ lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.
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spelling pubmed-89515402022-03-26 A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome Duarte, Elysângela Dittz Braga, Patrícia P. Guimarães, Bárbara R. da Silva, Juliana B. Caldeira, Sílvia Healthcare (Basel) Article Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents’ lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition. MDPI 2022-03-16 /pmc/articles/PMC8951540/ /pubmed/35327024 http://dx.doi.org/10.3390/healthcare10030546 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Duarte, Elysângela Dittz
Braga, Patrícia P.
Guimarães, Bárbara R.
da Silva, Juliana B.
Caldeira, Sílvia
A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title_full A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title_fullStr A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title_full_unstemmed A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title_short A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
title_sort qualitative study of the spiritual aspects of parenting a child with down syndrome
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8951540/
https://www.ncbi.nlm.nih.gov/pubmed/35327024
http://dx.doi.org/10.3390/healthcare10030546
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