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Digital approaches to enhancing community engagement in clinical trials
Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digit...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group UK
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8956701/ https://www.ncbi.nlm.nih.gov/pubmed/35338241 http://dx.doi.org/10.1038/s41746-022-00581-1 |
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author | Tan, Rayner K. J. Wu, Dan Day, Suzanne Zhao, Yang Larson, Heidi J. Sylvia, Sean Tang, Weiming Tucker, Joseph D. |
author_facet | Tan, Rayner K. J. Wu, Dan Day, Suzanne Zhao, Yang Larson, Heidi J. Sylvia, Sean Tang, Weiming Tucker, Joseph D. |
author_sort | Tan, Rayner K. J. |
collection | PubMed |
description | Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digital approaches can be implemented to enhance community engagement in clinical trials. This narrative review examines three key areas for digital approaches to deepen community engagement in clinical trials—the use of digital technology for trial processes to decentralize trials, digital crowdsourcing to develop trial components, and digital qualitative research methods. We highlight how digital approaches enhanced community engagement through a greater diversity of participants, and deepened community engagement through the decentralization of research processes. We discuss new possibilities that digital technologies offer for community engagement, and highlight potential strengths, weaknesses, and practical considerations. We argue that strengthening community engagement using a digital approach can enhance equity and improve health outcomes. |
format | Online Article Text |
id | pubmed-8956701 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Nature Publishing Group UK |
record_format | MEDLINE/PubMed |
spelling | pubmed-89567012022-04-11 Digital approaches to enhancing community engagement in clinical trials Tan, Rayner K. J. Wu, Dan Day, Suzanne Zhao, Yang Larson, Heidi J. Sylvia, Sean Tang, Weiming Tucker, Joseph D. NPJ Digit Med Review Article Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digital approaches can be implemented to enhance community engagement in clinical trials. This narrative review examines three key areas for digital approaches to deepen community engagement in clinical trials—the use of digital technology for trial processes to decentralize trials, digital crowdsourcing to develop trial components, and digital qualitative research methods. We highlight how digital approaches enhanced community engagement through a greater diversity of participants, and deepened community engagement through the decentralization of research processes. We discuss new possibilities that digital technologies offer for community engagement, and highlight potential strengths, weaknesses, and practical considerations. We argue that strengthening community engagement using a digital approach can enhance equity and improve health outcomes. Nature Publishing Group UK 2022-03-25 /pmc/articles/PMC8956701/ /pubmed/35338241 http://dx.doi.org/10.1038/s41746-022-00581-1 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Review Article Tan, Rayner K. J. Wu, Dan Day, Suzanne Zhao, Yang Larson, Heidi J. Sylvia, Sean Tang, Weiming Tucker, Joseph D. Digital approaches to enhancing community engagement in clinical trials |
title | Digital approaches to enhancing community engagement in clinical trials |
title_full | Digital approaches to enhancing community engagement in clinical trials |
title_fullStr | Digital approaches to enhancing community engagement in clinical trials |
title_full_unstemmed | Digital approaches to enhancing community engagement in clinical trials |
title_short | Digital approaches to enhancing community engagement in clinical trials |
title_sort | digital approaches to enhancing community engagement in clinical trials |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8956701/ https://www.ncbi.nlm.nih.gov/pubmed/35338241 http://dx.doi.org/10.1038/s41746-022-00581-1 |
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