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Digital approaches to enhancing community engagement in clinical trials

Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digit...

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Detalles Bibliográficos
Autores principales: Tan, Rayner K. J., Wu, Dan, Day, Suzanne, Zhao, Yang, Larson, Heidi J., Sylvia, Sean, Tang, Weiming, Tucker, Joseph D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8956701/
https://www.ncbi.nlm.nih.gov/pubmed/35338241
http://dx.doi.org/10.1038/s41746-022-00581-1
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author Tan, Rayner K. J.
Wu, Dan
Day, Suzanne
Zhao, Yang
Larson, Heidi J.
Sylvia, Sean
Tang, Weiming
Tucker, Joseph D.
author_facet Tan, Rayner K. J.
Wu, Dan
Day, Suzanne
Zhao, Yang
Larson, Heidi J.
Sylvia, Sean
Tang, Weiming
Tucker, Joseph D.
author_sort Tan, Rayner K. J.
collection PubMed
description Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digital approaches can be implemented to enhance community engagement in clinical trials. This narrative review examines three key areas for digital approaches to deepen community engagement in clinical trials—the use of digital technology for trial processes to decentralize trials, digital crowdsourcing to develop trial components, and digital qualitative research methods. We highlight how digital approaches enhanced community engagement through a greater diversity of participants, and deepened community engagement through the decentralization of research processes. We discuss new possibilities that digital technologies offer for community engagement, and highlight potential strengths, weaknesses, and practical considerations. We argue that strengthening community engagement using a digital approach can enhance equity and improve health outcomes.
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spelling pubmed-89567012022-04-11 Digital approaches to enhancing community engagement in clinical trials Tan, Rayner K. J. Wu, Dan Day, Suzanne Zhao, Yang Larson, Heidi J. Sylvia, Sean Tang, Weiming Tucker, Joseph D. NPJ Digit Med Review Article Digital approaches are increasingly common in clinical trial recruitment, retention, analysis, and dissemination. Community engagement processes have contributed to the successful implementation of clinical trials and are crucial in enhancing equity in trials. However, few studies focus on how digital approaches can be implemented to enhance community engagement in clinical trials. This narrative review examines three key areas for digital approaches to deepen community engagement in clinical trials—the use of digital technology for trial processes to decentralize trials, digital crowdsourcing to develop trial components, and digital qualitative research methods. We highlight how digital approaches enhanced community engagement through a greater diversity of participants, and deepened community engagement through the decentralization of research processes. We discuss new possibilities that digital technologies offer for community engagement, and highlight potential strengths, weaknesses, and practical considerations. We argue that strengthening community engagement using a digital approach can enhance equity and improve health outcomes. Nature Publishing Group UK 2022-03-25 /pmc/articles/PMC8956701/ /pubmed/35338241 http://dx.doi.org/10.1038/s41746-022-00581-1 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Review Article
Tan, Rayner K. J.
Wu, Dan
Day, Suzanne
Zhao, Yang
Larson, Heidi J.
Sylvia, Sean
Tang, Weiming
Tucker, Joseph D.
Digital approaches to enhancing community engagement in clinical trials
title Digital approaches to enhancing community engagement in clinical trials
title_full Digital approaches to enhancing community engagement in clinical trials
title_fullStr Digital approaches to enhancing community engagement in clinical trials
title_full_unstemmed Digital approaches to enhancing community engagement in clinical trials
title_short Digital approaches to enhancing community engagement in clinical trials
title_sort digital approaches to enhancing community engagement in clinical trials
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8956701/
https://www.ncbi.nlm.nih.gov/pubmed/35338241
http://dx.doi.org/10.1038/s41746-022-00581-1
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