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Patient and Public Involvement in Dermatology Research: A Review

Patient and public involvement (PPI) in research is defined as research being carried out ‘with’ or ‘by’ members of the public, patients, and carers, on both an individual and a group level, rather than simply ‘about’, or ‘for’ them. Within dermatology, PPI is increasingly recognised as a vital comp...

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Autores principales: Heague, Megan, Ray, Chandrima, Bowers, Joanne, Guckian, Jonathan, Arents, Bernd W. M., Layton, Alison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8962283/
https://www.ncbi.nlm.nih.gov/pubmed/35349092
http://dx.doi.org/10.1007/s40257-022-00680-5
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author Heague, Megan
Ray, Chandrima
Bowers, Joanne
Guckian, Jonathan
Arents, Bernd W. M.
Layton, Alison
author_facet Heague, Megan
Ray, Chandrima
Bowers, Joanne
Guckian, Jonathan
Arents, Bernd W. M.
Layton, Alison
author_sort Heague, Megan
collection PubMed
description Patient and public involvement (PPI) in research is defined as research being carried out ‘with’ or ‘by’ members of the public, patients, and carers, on both an individual and a group level, rather than simply ‘about’, or ‘for’ them. Within dermatology, PPI is increasingly recognised as a vital component of research as it helps to ensure that research remains relevant to the populations we intend to serve. Dermatology scholarship, with its rich psychosocial implications due to the stigma, physical disability, and mental health burdens these conditions may incur, is in a unique position to benefit from PPI to unlock previously inaccessible patient lived experiences or therapeutic consequences. Throughout the rapid growth of PPI, it has been infused throughout the research lifecycle, from design to dissemination and beyond. After first explaining the principles of PPI, we examine the existing evidence base at each research stage to explore whether our specialty has effectively harnessed this approach and to identify any subsequent impact of PPI. Finally, we scrutinise the challenges faced by those implementing PPI in dermatology research.
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spelling pubmed-89622832022-03-30 Patient and Public Involvement in Dermatology Research: A Review Heague, Megan Ray, Chandrima Bowers, Joanne Guckian, Jonathan Arents, Bernd W. M. Layton, Alison Am J Clin Dermatol Review Article Patient and public involvement (PPI) in research is defined as research being carried out ‘with’ or ‘by’ members of the public, patients, and carers, on both an individual and a group level, rather than simply ‘about’, or ‘for’ them. Within dermatology, PPI is increasingly recognised as a vital component of research as it helps to ensure that research remains relevant to the populations we intend to serve. Dermatology scholarship, with its rich psychosocial implications due to the stigma, physical disability, and mental health burdens these conditions may incur, is in a unique position to benefit from PPI to unlock previously inaccessible patient lived experiences or therapeutic consequences. Throughout the rapid growth of PPI, it has been infused throughout the research lifecycle, from design to dissemination and beyond. After first explaining the principles of PPI, we examine the existing evidence base at each research stage to explore whether our specialty has effectively harnessed this approach and to identify any subsequent impact of PPI. Finally, we scrutinise the challenges faced by those implementing PPI in dermatology research. Springer International Publishing 2022-03-29 2022 /pmc/articles/PMC8962283/ /pubmed/35349092 http://dx.doi.org/10.1007/s40257-022-00680-5 Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2022 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Review Article
Heague, Megan
Ray, Chandrima
Bowers, Joanne
Guckian, Jonathan
Arents, Bernd W. M.
Layton, Alison
Patient and Public Involvement in Dermatology Research: A Review
title Patient and Public Involvement in Dermatology Research: A Review
title_full Patient and Public Involvement in Dermatology Research: A Review
title_fullStr Patient and Public Involvement in Dermatology Research: A Review
title_full_unstemmed Patient and Public Involvement in Dermatology Research: A Review
title_short Patient and Public Involvement in Dermatology Research: A Review
title_sort patient and public involvement in dermatology research: a review
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8962283/
https://www.ncbi.nlm.nih.gov/pubmed/35349092
http://dx.doi.org/10.1007/s40257-022-00680-5
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