Pain points in parents’ interactions with newborn screening systems: a qualitative study
BACKGROUND & OBJECTIVES: This study aims to explore and elucidate parents’ experience of newborn screening [NBS], with the overarching goal of identifying desiderata for the development of informatics-based educational and health management resources. METHODS: We conducted four focus groups and...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8967687/ https://www.ncbi.nlm.nih.gov/pubmed/35361157 http://dx.doi.org/10.1186/s12887-022-03160-1 |