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Pain points in parents’ interactions with newborn screening systems: a qualitative study

BACKGROUND & OBJECTIVES: This study aims to explore and elucidate parents’ experience of newborn screening [NBS], with the overarching goal of identifying desiderata for the development of informatics-based educational and health management resources. METHODS: We conducted four focus groups and...

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Detalles Bibliográficos
Autores principales:	Conway, Mike, Vuong, Truc Thuy, Hart, Kim, Rohrwasser, Andreas, Eilbeck, Karen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8967687/ https://www.ncbi.nlm.nih.gov/pubmed/35361157 http://dx.doi.org/10.1186/s12887-022-03160-1

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