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Transformative effect of a Humanitarian Program for individuals affected by rare diseases: building support systems and creating local expertise
Rare diseases affect > 400 million people globally with a disproportionate burden falling on children, resulting in high morbidity and mortality rates. Affected individuals in some under-resourced countries have limited access to expert care or treatments; moreover, they suffer long diagnostic jo...
| Autores principales: | , , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977120/ https://www.ncbi.nlm.nih.gov/pubmed/35369888 http://dx.doi.org/10.1186/s13023-022-02192-1 |