Cargando…

Differential humanistic and economic burden of mild, moderate and severe haemophilia in european adults: a regression analysis of the CHESS II study

BACKGROUND: The lifelong nature of haemophilia makes patient-centred and societal assessments of its impact important to clinical and policy decisions. Quantifying the humanistic and economic burden by severity is key to assessing the impact on healthcare systems. We analysed the annual direct medic...

Descripción completa

Detalles Bibliográficos
Autores principales:	Rodriguez-Santana, Idaira, DasMahapatra, Pronabesh, Burke, Tom, Hakimi, Zalmai, Bartelt-Hofer, José, Nazir, Jameel, O’Hara, Jamie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8981861/ https://www.ncbi.nlm.nih.gov/pubmed/35379282 http://dx.doi.org/10.1186/s13023-022-02300-1

Ejemplares similares

Health-related quality of life, direct medical and societal costs among children with moderate or severe haemophilia in Europe: multivariable models of the CHESS-PAEDs study
por: Rodriguez-Santana, Idaira, et al.
Publicado: (2022)

The cost of severe haemophilia in Europe: the CHESS study
por: O’Hara, Jamie, et al.
Publicado: (2017)

Clinical, humanistic, and economic burden of severe hemophilia B in the United States: Results from the CHESS US and CHESS US+ population surveys
por: Burke, Tom, et al.
Publicado: (2021)

Clinical, humanistic, and economic burden of severe haemophilia B in adults receiving factor IX prophylaxis: findings from the CHESS II real-world burden of illness study in Europe
por: Burke, Tom, et al.
Publicado: (2021)

Recombinant FVIIIFc Versus BAY 94-9027 for Treatment of Patients with Haemophilia A: Comparative Efficacy Using a Matching Adjusted Indirect Comparison
por: Hakimi, Zalmai, et al.
Publicado: (2020)

Relationship between bleeding episodes, health‐related quality of life and direct costs in adults with severe haemophilia A: Secondary analyses from the CHESS study
por: O'Hara, Jamie, et al.
Publicado: (2022)

Cost‐effectiveness of recombinant factor VIII Fc versus emicizumab for prophylaxis in adults and adolescents with haemophilia A without inhibitors in the UK
por: Kragh, Nana, et al.
Publicado: (2022)

Patient-centered activity monitoring in the self-management of chronic health conditions
por: Chiauzzi, Emil, et al.
Publicado: (2015)

Inhibitor clinical burden of disease: a comparative analysis of the CHESS data
por: Oladapo, Abiola O., et al.
Publicado: (2018)

Mobility assessment using wearable technology in patients with late-onset Pompe disease
por: Hamed, Alaa, et al.
Publicado: (2019)

Clinical trials from the patient perspective: survey in an online patient community
por: DasMahapatra, Pronabesh, et al.
Publicado: (2017)

Limited Generalizability of a Retrospective Chart Review Comparing 3 Recombinant FVIII Products for Hemophilia A Prophylaxis
por: Preblick, Ronald, et al.
Publicado: (2020)

The Impact of Pharmacokinetic-Guided Prophylaxis on Clinical Outcomes and Healthcare Resource Utilization in Hemophilia A Patients: Real-World Evidence from the CHESS II Study
por: Ferri Grazzi, Enrico, et al.
Publicado: (2022)

Cost-effectiveness of a fixed-dose combination of solifenacin and oral controlled adsorption system formulation of tamsulosin in men with lower urinary tract symptoms associated with benign prostatic hyperplasia
por: Nazir, Jameel, et al.
Publicado: (2015)

Achieving the unimaginable: Health equity in haemophilia
por: Skinner, Mark W., et al.
Publicado: (2019)

Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder
por: Desroziers, Katia, et al.
Publicado: (2013)

Real-world persistence and adherence to oral antimuscarinics and mirabegron in patients with overactive bladder (OAB): a systematic literature review
por: Yeowell, Gillian, et al.
Publicado: (2018)

Efficacy of rFIXFc versus rIX-FP for the Treatment of Patients with Hemophilia B: Matching-Adjusted Indirect Comparison of B-LONG and PROLONG-9FP Trials
por: Astermark, Jan, et al.
Publicado: (2021)

Humanistic Burden of Huntington Disease: Evidence From the Huntington Disease Burden of Illness Study
por: Rodriguez Santana, Idaira, et al.
Publicado: (2022)

Cost-Effectiveness Analysis of rFVIIIFc Versus Contemporary rFVIII Treatments for Patients with Severe Hemophilia A Without Inhibitors in the United States
por: Bullement, Ash, et al.
Publicado: (2021)

Development of the Fabry Disease Patient-Reported Outcome (FD-PRO): a new instrument to measure the symptoms and impacts of Fabry Disease
por: Hamed, Alaa, et al.
Publicado: (2021)

Association of factor expression levels with annual bleeding rate in people with haemophilia B
por: Burke, Tom, et al.
Publicado: (2022)

Cost-effectiveness of solifenacin compared with oral antimuscarinic agents for the treatment of patients with overactive bladder in the UK
por: Hakimi, Zalmai, et al.
Publicado: (2018)

Improvement in pain-related quality of life in patients with hemophilia A treated with rFVIIIFc individualized prophylaxis: post hoc analysis from the A-LONG study
por: Pasi, John, et al.
Publicado: (2022)

Elicitation of Health-related Quality-of-life Concepts Associated with Overactive Bladder: A Qualitative Study
por: Hawken, Natalia, et al.
Publicado: (2016)

Mapping the EORTC QLQ-C30 onto the EQ-5D-5L index for patients with paroxysmal nocturnal hemoglobinuria in France
por: Wojciechowski, Piotr, et al.
Publicado: (2023)

S300: ASSESSMENT OF JOINT HEALTH IN PATIENTS RECEIVING PROPHYLAXIS FOR HAEMOPHILIA A IN FIVE EUROPEAN COUNTRIES: A CROSS-SECTIONAL SURVEY
por: De la Corte‐rodriguez, Hortensia, et al.
Publicado: (2023)

Factors in Patient Empowerment: A Survey of an Online Patient Research Network
por: Chiauzzi, Emil, et al.
Publicado: (2016)

Computer chess
por: Newborn, Monroe
Publicado: (1975)

Chess and computers
por: Levy, David
Publicado: (1976)

Chess Not Checkers
por: Miller, Mark
Publicado: (2015)

The impact of bleeding event frequency on health-related quality of life and work productivity outcomes in a European cohort of adults with haemophilia A: insights from the CHESS II study
por: Young, Lisa, et al.
Publicado: (2023)

Economic Impact of Mirabegron Versus Antimuscarinics for the Treatment of Overactive Bladder in the UK
por: Nazir, Jameel, et al.
Publicado: (2017)

A retrospective study of treatment persistence and adherence to α-blocker plus antimuscarinic combination therapies, in men with LUTS/BPH in the Netherlands
por: Drake, Marcus J., et al.
Publicado: (2017)

Humanistic and economic aspects of haemophilia treatment in Bulgaria. Comparison between two therapeutic approaches: prophylactic vs. on-demand treatment
por: Petrova, Guenka, et al.
Publicado: (2014)

The relationship between target joints and direct resource use in severe haemophilia
por: O’Hara, Jamie, et al.
Publicado: (2018)

Recall of Briefly Presented Chess Positions and Its Relation to Chess Skill
por: Gong, Yanfei, et al.
Publicado: (2015)

The impact of severe haemophilia and the presence of target joints on health-related quality-of-life
por: O’Hara, Jamie, et al.
Publicado: (2018)

In search of a daily physical activity “sweet spot”: Piloting a digital tracking intervention for people with multiple sclerosis
por: Chiauzzi, Emil, et al.
Publicado: (2019)

The Best of Chess blues
Publicado: (1987)

Cannot write session to /tmp/vufind_sessions/sess_o294m69d2hhhr7u7c47ak04833