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Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform
The focus of the current paper is on a design of responsible governance of food consumer science e-infrastructure using the case study Determinants and Intake Data Platform (DI Data Platform). One of the key challenges for implementation of the DI Data Platform is how to develop responsible governan...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8984108/ https://www.ncbi.nlm.nih.gov/pubmed/35402471 http://dx.doi.org/10.3389/fnut.2021.795802 |
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author | Timotijevic, Lada Carr, Indira De La Cueva, Javier Eftimov, Tome Hodgkins, Charo E. Koroušić Seljak, Barbara Mikkelsen, Bent E. Selnes, Trond Van't Veer, Pieter Zimmermann, Karin |
author_facet | Timotijevic, Lada Carr, Indira De La Cueva, Javier Eftimov, Tome Hodgkins, Charo E. Koroušić Seljak, Barbara Mikkelsen, Bent E. Selnes, Trond Van't Veer, Pieter Zimmermann, Karin |
author_sort | Timotijevic, Lada |
collection | PubMed |
description | The focus of the current paper is on a design of responsible governance of food consumer science e-infrastructure using the case study Determinants and Intake Data Platform (DI Data Platform). One of the key challenges for implementation of the DI Data Platform is how to develop responsible governance that observes the ethical and legal frameworks of big data research and innovation, whilst simultaneously capitalizing on huge opportunities offered by open science and the use of big data in food consumer science research. We address this challenge with a specific focus on four key governance considerations: data type and technology; data ownership and intellectual property; data privacy and security; and institutional arrangements for ethical governance. The paper concludes with a set of responsible research governance principles that can inform the implementation of DI Data Platform, and in particular: consider both individual and group privacy; monitor the power and control (e.g., between the scientist and the research participant) in the process of research; question the veracity of new knowledge based on big data analytics; understand the diverse interpretations of scientists' responsibility across different jurisdictions. |
format | Online Article Text |
id | pubmed-8984108 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-89841082022-04-07 Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform Timotijevic, Lada Carr, Indira De La Cueva, Javier Eftimov, Tome Hodgkins, Charo E. Koroušić Seljak, Barbara Mikkelsen, Bent E. Selnes, Trond Van't Veer, Pieter Zimmermann, Karin Front Nutr Nutrition The focus of the current paper is on a design of responsible governance of food consumer science e-infrastructure using the case study Determinants and Intake Data Platform (DI Data Platform). One of the key challenges for implementation of the DI Data Platform is how to develop responsible governance that observes the ethical and legal frameworks of big data research and innovation, whilst simultaneously capitalizing on huge opportunities offered by open science and the use of big data in food consumer science research. We address this challenge with a specific focus on four key governance considerations: data type and technology; data ownership and intellectual property; data privacy and security; and institutional arrangements for ethical governance. The paper concludes with a set of responsible research governance principles that can inform the implementation of DI Data Platform, and in particular: consider both individual and group privacy; monitor the power and control (e.g., between the scientist and the research participant) in the process of research; question the veracity of new knowledge based on big data analytics; understand the diverse interpretations of scientists' responsibility across different jurisdictions. Frontiers Media S.A. 2022-03-23 /pmc/articles/PMC8984108/ /pubmed/35402471 http://dx.doi.org/10.3389/fnut.2021.795802 Text en Copyright © 2022 Timotijevic, Carr, De La Cueva, Eftimov, Hodgkins, Koroušić Seljak, Mikkelsen, Selnes, Van't Veer and Zimmermann. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Nutrition Timotijevic, Lada Carr, Indira De La Cueva, Javier Eftimov, Tome Hodgkins, Charo E. Koroušić Seljak, Barbara Mikkelsen, Bent E. Selnes, Trond Van't Veer, Pieter Zimmermann, Karin Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title | Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title_full | Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title_fullStr | Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title_full_unstemmed | Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title_short | Responsible Governance for a Food and Nutrition E-Infrastructure: Case Study of the Determinants and Intake Data Platform |
title_sort | responsible governance for a food and nutrition e-infrastructure: case study of the determinants and intake data platform |
topic | Nutrition |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8984108/ https://www.ncbi.nlm.nih.gov/pubmed/35402471 http://dx.doi.org/10.3389/fnut.2021.795802 |
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