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A multi-stage process to develop quality indicators for community-based palliative care using interRAI data
BACKGROUND: Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generat...
Autores principales: | , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8989210/ https://www.ncbi.nlm.nih.gov/pubmed/35390091 http://dx.doi.org/10.1371/journal.pone.0266569 |
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author | Guthrie, Dawn M. Williams, Nicole Beach, Cheryl Buzath, Emma Cohen, Joachim Declercq, Anja Fisher, Kathryn Fries, Brant E. Goodridge, Donna Hermans, Kirsten Hirdes, John P. Seow, Hsien Silveira, Maria Sinnarajah, Aynharan Stevens, Susan Tanuseputro, Peter Taylor, Deanne Vadeboncoeur, Christina Martin, Tracy Lyn Wityk |
author_facet | Guthrie, Dawn M. Williams, Nicole Beach, Cheryl Buzath, Emma Cohen, Joachim Declercq, Anja Fisher, Kathryn Fries, Brant E. Goodridge, Donna Hermans, Kirsten Hirdes, John P. Seow, Hsien Silveira, Maria Sinnarajah, Aynharan Stevens, Susan Tanuseputro, Peter Taylor, Deanne Vadeboncoeur, Christina Martin, Tracy Lyn Wityk |
author_sort | Guthrie, Dawn M. |
collection | PubMed |
description | BACKGROUND: Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments—an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families. METHODS: The development efforts took part in multiple stages, between 2017–2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method. RESULTS: Based on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs. CONCLUSIONS: Through in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families. |
format | Online Article Text |
id | pubmed-8989210 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-89892102022-04-08 A multi-stage process to develop quality indicators for community-based palliative care using interRAI data Guthrie, Dawn M. Williams, Nicole Beach, Cheryl Buzath, Emma Cohen, Joachim Declercq, Anja Fisher, Kathryn Fries, Brant E. Goodridge, Donna Hermans, Kirsten Hirdes, John P. Seow, Hsien Silveira, Maria Sinnarajah, Aynharan Stevens, Susan Tanuseputro, Peter Taylor, Deanne Vadeboncoeur, Christina Martin, Tracy Lyn Wityk PLoS One Research Article BACKGROUND: Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments—an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families. METHODS: The development efforts took part in multiple stages, between 2017–2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method. RESULTS: Based on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs. CONCLUSIONS: Through in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families. Public Library of Science 2022-04-07 /pmc/articles/PMC8989210/ /pubmed/35390091 http://dx.doi.org/10.1371/journal.pone.0266569 Text en © 2022 Guthrie et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Guthrie, Dawn M. Williams, Nicole Beach, Cheryl Buzath, Emma Cohen, Joachim Declercq, Anja Fisher, Kathryn Fries, Brant E. Goodridge, Donna Hermans, Kirsten Hirdes, John P. Seow, Hsien Silveira, Maria Sinnarajah, Aynharan Stevens, Susan Tanuseputro, Peter Taylor, Deanne Vadeboncoeur, Christina Martin, Tracy Lyn Wityk A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title | A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title_full | A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title_fullStr | A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title_full_unstemmed | A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title_short | A multi-stage process to develop quality indicators for community-based palliative care using interRAI data |
title_sort | multi-stage process to develop quality indicators for community-based palliative care using interrai data |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8989210/ https://www.ncbi.nlm.nih.gov/pubmed/35390091 http://dx.doi.org/10.1371/journal.pone.0266569 |
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