Privacy-aware sharing and collaborative analysis of personal wellness data: Process model, domain ontology, software system and user trial

Personal wellness data collected using wearable devices is a valuable resource, potentially containing knowledge that goes beyond what the device and its the associated software application can tell the user. However, extracting such knowledge from the data requires expertise that an average user cannot be expected to have. To overcome this problem, the data owner could collaborate with a data analysis expert; for such a collaboration to succeed, the collaborators need to be able to find one another, communicate with one another and share datasets and analysis results with one another. In this paper we presents a process model for such collaborations, a domain ontology and software system developed to support the process, and the results of a user trial demonstrating collaborative analysis of sleep data. Unlike existing collaborative data analytics tools, the process and software have been specifically designed with the non-expert data owner in mind, enabling them to control their data and protect their privacy by selecting the data to be shared on a case-by-case basis. Theoretical analysis and empirical results suggest that the process and its implementation are valid as a proof of concept.