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Parental Guidance Suggested: Engaging Parents as Partners in Research Studies of Genomic Screening for a Pediatric Population
Recent advances in genomic sequencing and genomic medicine are reshaping the landscape of clinical care. As a screening modality, genetic sequencing has the potential to dramatically expand the clinical utility of newborn screening (NBS), though significant barriers remain regarding ethical, legal,...
Autores principales: | Powell, Sabrina N., Byfield, Grace, Bennetone, Ashley, Frantz, Annabelle M., Harrison, Langston K., James-Crook, Erin R., Osborne, Heather, Owens, Thomas H., Shaw, Jonathan L., O’Daniel, Julianne, Milko, Laura V. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8990237/ https://www.ncbi.nlm.nih.gov/pubmed/35401676 http://dx.doi.org/10.3389/fgene.2022.867030 |
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