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Cascade screening for beta-thalassaemia in Pakistan: relatives’ experiences of a decision support intervention in routine practice
Low uptake of cascade screening for βeta-thalassaemia major (β-TM) in the ‘Punjab Thalassaemia Prevention Project’ (PTPP) in Pakistan led to the development of a ‘decision support intervention for relatives’ (DeSIRe). This paper presents the experiences of relatives of children with β-TM of the DeSI...
Autores principales: | Ahmed, Shenaz, Jafri, Hussain, Faran, Muhammed, Ahmed, Wajeeha Naseer, Rashid, Yasmin, Ehsan, Yasmin, Ahmed, Mushtaq |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8991204/ https://www.ncbi.nlm.nih.gov/pubmed/34608271 http://dx.doi.org/10.1038/s41431-021-00974-y |
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