Designing rare disease care pathways in the Republic of Ireland: a co-operative model

BACKGROUND: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high level of...

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Detalles Bibliográficos
Autores principales: Ward, A. J., Murphy, D., Marron, R., McGrath, V., Bolz-Johnson, M., Cullen, W., Daly, A., Hardiman, O., Lawlor, A., Lynch, S. A., MacLachlan, M., McBrien, J., Ni Bhriain, S., O’Byrne, J. J., O’Connell, S. M., Turner, J., Treacy, E. P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8996209/
https://www.ncbi.nlm.nih.gov/pubmed/35410222
http://dx.doi.org/10.1186/s13023-022-02309-6

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