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Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study

(1) Background: The needs of cancer survivors are often not reflected in practice. One of the main barriers of the use of patient-reported outcomes is associated with data collection and the interpretation of patient-reported outcomes (PROs) due to a multitude of instruments and measuring approaches...

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Autores principales: Mlakar, Izidor, Lin, Simon, Nateqi, Jama, Gruarin, Stefanie, Diéguez, Lorena, Piairo, Paulina, Pires, Liliana R., Tement, Sara, Aleksandraviča, Ilona, Leja, Mārcis, Arcimoviča, Krista, Bleret, Valérie, Kaux, Jean-François, Kolh, Philippe, Maquet, Didier, Gómez, Jesús Garcia, Mata, Jesus García, Salgado, Mercedes, Horvat, Matej, Ravnik, Maja, Flis, Vojko, Smrke, Urška
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8999421/
https://www.ncbi.nlm.nih.gov/pubmed/35407649
http://dx.doi.org/10.3390/jcm11072041
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author Mlakar, Izidor
Lin, Simon
Nateqi, Jama
Gruarin, Stefanie
Diéguez, Lorena
Piairo, Paulina
Pires, Liliana R.
Tement, Sara
Aleksandraviča, Ilona
Leja, Mārcis
Arcimoviča, Krista
Bleret, Valérie
Kaux, Jean-François
Kolh, Philippe
Maquet, Didier
Gómez, Jesús Garcia
Mata, Jesus García
Salgado, Mercedes
Horvat, Matej
Ravnik, Maja
Flis, Vojko
Smrke, Urška
author_facet Mlakar, Izidor
Lin, Simon
Nateqi, Jama
Gruarin, Stefanie
Diéguez, Lorena
Piairo, Paulina
Pires, Liliana R.
Tement, Sara
Aleksandraviča, Ilona
Leja, Mārcis
Arcimoviča, Krista
Bleret, Valérie
Kaux, Jean-François
Kolh, Philippe
Maquet, Didier
Gómez, Jesús Garcia
Mata, Jesus García
Salgado, Mercedes
Horvat, Matej
Ravnik, Maja
Flis, Vojko
Smrke, Urška
author_sort Mlakar, Izidor
collection PubMed
description (1) Background: The needs of cancer survivors are often not reflected in practice. One of the main barriers of the use of patient-reported outcomes is associated with data collection and the interpretation of patient-reported outcomes (PROs) due to a multitude of instruments and measuring approaches. The aim of the study was to establish an expert consensus on the relevance and key indicators of quality of life in the clinical practice of breast cancer survivors. (2) Methods: Potential indicators of the quality of life of breast cancer survivors were extracted from the established quality of life models, depicting survivors’ perspectives. The specific domains and subdomains of quality of life were evaluated in a two-stage online Delphi process, including an international and multidisciplinary panel of experts. (3) Results: The first round of the Delphi process was completed by 57 and the second by 37 participants. A consensus was reached for the Physical and Psychological domains, and on eleven subdomains of quality of life. The results were further supported by the additional ranking of importance of the subdomains in the second round. (4) Conclusions: The current findings can serve to optimize the use of instruments and address the challenges related to data collection and interpretation as the facilitators of the adaption in routine practice.
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spelling pubmed-89994212022-04-12 Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study Mlakar, Izidor Lin, Simon Nateqi, Jama Gruarin, Stefanie Diéguez, Lorena Piairo, Paulina Pires, Liliana R. Tement, Sara Aleksandraviča, Ilona Leja, Mārcis Arcimoviča, Krista Bleret, Valérie Kaux, Jean-François Kolh, Philippe Maquet, Didier Gómez, Jesús Garcia Mata, Jesus García Salgado, Mercedes Horvat, Matej Ravnik, Maja Flis, Vojko Smrke, Urška J Clin Med Article (1) Background: The needs of cancer survivors are often not reflected in practice. One of the main barriers of the use of patient-reported outcomes is associated with data collection and the interpretation of patient-reported outcomes (PROs) due to a multitude of instruments and measuring approaches. The aim of the study was to establish an expert consensus on the relevance and key indicators of quality of life in the clinical practice of breast cancer survivors. (2) Methods: Potential indicators of the quality of life of breast cancer survivors were extracted from the established quality of life models, depicting survivors’ perspectives. The specific domains and subdomains of quality of life were evaluated in a two-stage online Delphi process, including an international and multidisciplinary panel of experts. (3) Results: The first round of the Delphi process was completed by 57 and the second by 37 participants. A consensus was reached for the Physical and Psychological domains, and on eleven subdomains of quality of life. The results were further supported by the additional ranking of importance of the subdomains in the second round. (4) Conclusions: The current findings can serve to optimize the use of instruments and address the challenges related to data collection and interpretation as the facilitators of the adaption in routine practice. MDPI 2022-04-05 /pmc/articles/PMC8999421/ /pubmed/35407649 http://dx.doi.org/10.3390/jcm11072041 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Mlakar, Izidor
Lin, Simon
Nateqi, Jama
Gruarin, Stefanie
Diéguez, Lorena
Piairo, Paulina
Pires, Liliana R.
Tement, Sara
Aleksandraviča, Ilona
Leja, Mārcis
Arcimoviča, Krista
Bleret, Valérie
Kaux, Jean-François
Kolh, Philippe
Maquet, Didier
Gómez, Jesús Garcia
Mata, Jesus García
Salgado, Mercedes
Horvat, Matej
Ravnik, Maja
Flis, Vojko
Smrke, Urška
Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title_full Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title_fullStr Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title_full_unstemmed Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title_short Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study
title_sort establishing an expert consensus on key indicators of the quality of life among breast cancer survivors: a modified delphi study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8999421/
https://www.ncbi.nlm.nih.gov/pubmed/35407649
http://dx.doi.org/10.3390/jcm11072041
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