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System Architecture of a European Platform for Health Policy Decision Making: MIDAS

BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing al...

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Autores principales: Shi, Xi, Nikolic, Gorana, Fischaber, Scott, Black, Michaela, Rankin, Debbie, Epelde, Gorka, Beristain, Andoni, Alvarez, Roberto, Arrue, Monica, Pita Costa, Joao, Grobelnik, Marko, Stopar, Luka, Pajula, Juha, Umer, Adil, Poliwoda, Peter, Wallace, Jonathan, Carlin, Paul, Pääkkönen, Jarmo, De Moor, Bart
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9008448/
https://www.ncbi.nlm.nih.gov/pubmed/35433572
http://dx.doi.org/10.3389/fpubh.2022.838438
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author Shi, Xi
Nikolic, Gorana
Fischaber, Scott
Black, Michaela
Rankin, Debbie
Epelde, Gorka
Beristain, Andoni
Alvarez, Roberto
Arrue, Monica
Pita Costa, Joao
Grobelnik, Marko
Stopar, Luka
Pajula, Juha
Umer, Adil
Poliwoda, Peter
Wallace, Jonathan
Carlin, Paul
Pääkkönen, Jarmo
De Moor, Bart
author_facet Shi, Xi
Nikolic, Gorana
Fischaber, Scott
Black, Michaela
Rankin, Debbie
Epelde, Gorka
Beristain, Andoni
Alvarez, Roberto
Arrue, Monica
Pita Costa, Joao
Grobelnik, Marko
Stopar, Luka
Pajula, Juha
Umer, Adil
Poliwoda, Peter
Wallace, Jonathan
Carlin, Paul
Pääkkönen, Jarmo
De Moor, Bart
author_sort Shi, Xi
collection PubMed
description BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing all relevant data to assist in managing the health and wellbeing of all. The goal of this study was to develop a novel health data platform within the MIDAS (Meaningful Integration of Data Analytics and Services) project, that harnesses the potential of latent healthcare data in combination with open and social data to support evidence-based health policy decision-making in a privacy-preserving manner. METHODS: The MIDAS platform was developed in an iterative and collaborative way with close involvement of academia, industry, healthcare staff and policy-makers, to solve tasks including data storage, data harmonization, data analytics and visualizations, and open and social data analytics. The platform has been piloted and tested by health departments in four European countries, each focusing on different region-specific health challenges and related data sources. RESULTS: A novel health data platform solving the needs of Public Health decision-makers was successfully implemented within the four pilot regions connecting heterogeneous healthcare datasets and open datasets and turning large amounts of previously isolated data into actionable information allowing for evidence-based health policy-making and risk stratification through the application and visualization of advanced analytics. CONCLUSIONS: The MIDAS platform delivers a secure, effective and integrated solution to deal with health data, providing support for health policy decision-making, planning of public health activities and the implementation of the Health in All Policies approach. The platform has proven transferable, sustainable and scalable across policies, data and regions.
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spelling pubmed-90084482022-04-15 System Architecture of a European Platform for Health Policy Decision Making: MIDAS Shi, Xi Nikolic, Gorana Fischaber, Scott Black, Michaela Rankin, Debbie Epelde, Gorka Beristain, Andoni Alvarez, Roberto Arrue, Monica Pita Costa, Joao Grobelnik, Marko Stopar, Luka Pajula, Juha Umer, Adil Poliwoda, Peter Wallace, Jonathan Carlin, Paul Pääkkönen, Jarmo De Moor, Bart Front Public Health Public Health BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing all relevant data to assist in managing the health and wellbeing of all. The goal of this study was to develop a novel health data platform within the MIDAS (Meaningful Integration of Data Analytics and Services) project, that harnesses the potential of latent healthcare data in combination with open and social data to support evidence-based health policy decision-making in a privacy-preserving manner. METHODS: The MIDAS platform was developed in an iterative and collaborative way with close involvement of academia, industry, healthcare staff and policy-makers, to solve tasks including data storage, data harmonization, data analytics and visualizations, and open and social data analytics. The platform has been piloted and tested by health departments in four European countries, each focusing on different region-specific health challenges and related data sources. RESULTS: A novel health data platform solving the needs of Public Health decision-makers was successfully implemented within the four pilot regions connecting heterogeneous healthcare datasets and open datasets and turning large amounts of previously isolated data into actionable information allowing for evidence-based health policy-making and risk stratification through the application and visualization of advanced analytics. CONCLUSIONS: The MIDAS platform delivers a secure, effective and integrated solution to deal with health data, providing support for health policy decision-making, planning of public health activities and the implementation of the Health in All Policies approach. The platform has proven transferable, sustainable and scalable across policies, data and regions. Frontiers Media S.A. 2022-03-31 /pmc/articles/PMC9008448/ /pubmed/35433572 http://dx.doi.org/10.3389/fpubh.2022.838438 Text en Copyright © 2022 Shi, Nikolic, Fischaber, Black, Rankin, Epelde, Beristain, Alvarez, Arrue, Pita Costa, Grobelnik, Stopar, Pajula, Umer, Poliwoda, Wallace, Carlin, Pääkkönen and De Moor. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Public Health
Shi, Xi
Nikolic, Gorana
Fischaber, Scott
Black, Michaela
Rankin, Debbie
Epelde, Gorka
Beristain, Andoni
Alvarez, Roberto
Arrue, Monica
Pita Costa, Joao
Grobelnik, Marko
Stopar, Luka
Pajula, Juha
Umer, Adil
Poliwoda, Peter
Wallace, Jonathan
Carlin, Paul
Pääkkönen, Jarmo
De Moor, Bart
System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title_full System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title_fullStr System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title_full_unstemmed System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title_short System Architecture of a European Platform for Health Policy Decision Making: MIDAS
title_sort system architecture of a european platform for health policy decision making: midas
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9008448/
https://www.ncbi.nlm.nih.gov/pubmed/35433572
http://dx.doi.org/10.3389/fpubh.2022.838438
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