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System Architecture of a European Platform for Health Policy Decision Making: MIDAS
BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing al...
Autores principales: | , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9008448/ https://www.ncbi.nlm.nih.gov/pubmed/35433572 http://dx.doi.org/10.3389/fpubh.2022.838438 |
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author | Shi, Xi Nikolic, Gorana Fischaber, Scott Black, Michaela Rankin, Debbie Epelde, Gorka Beristain, Andoni Alvarez, Roberto Arrue, Monica Pita Costa, Joao Grobelnik, Marko Stopar, Luka Pajula, Juha Umer, Adil Poliwoda, Peter Wallace, Jonathan Carlin, Paul Pääkkönen, Jarmo De Moor, Bart |
author_facet | Shi, Xi Nikolic, Gorana Fischaber, Scott Black, Michaela Rankin, Debbie Epelde, Gorka Beristain, Andoni Alvarez, Roberto Arrue, Monica Pita Costa, Joao Grobelnik, Marko Stopar, Luka Pajula, Juha Umer, Adil Poliwoda, Peter Wallace, Jonathan Carlin, Paul Pääkkönen, Jarmo De Moor, Bart |
author_sort | Shi, Xi |
collection | PubMed |
description | BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing all relevant data to assist in managing the health and wellbeing of all. The goal of this study was to develop a novel health data platform within the MIDAS (Meaningful Integration of Data Analytics and Services) project, that harnesses the potential of latent healthcare data in combination with open and social data to support evidence-based health policy decision-making in a privacy-preserving manner. METHODS: The MIDAS platform was developed in an iterative and collaborative way with close involvement of academia, industry, healthcare staff and policy-makers, to solve tasks including data storage, data harmonization, data analytics and visualizations, and open and social data analytics. The platform has been piloted and tested by health departments in four European countries, each focusing on different region-specific health challenges and related data sources. RESULTS: A novel health data platform solving the needs of Public Health decision-makers was successfully implemented within the four pilot regions connecting heterogeneous healthcare datasets and open datasets and turning large amounts of previously isolated data into actionable information allowing for evidence-based health policy-making and risk stratification through the application and visualization of advanced analytics. CONCLUSIONS: The MIDAS platform delivers a secure, effective and integrated solution to deal with health data, providing support for health policy decision-making, planning of public health activities and the implementation of the Health in All Policies approach. The platform has proven transferable, sustainable and scalable across policies, data and regions. |
format | Online Article Text |
id | pubmed-9008448 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-90084482022-04-15 System Architecture of a European Platform for Health Policy Decision Making: MIDAS Shi, Xi Nikolic, Gorana Fischaber, Scott Black, Michaela Rankin, Debbie Epelde, Gorka Beristain, Andoni Alvarez, Roberto Arrue, Monica Pita Costa, Joao Grobelnik, Marko Stopar, Luka Pajula, Juha Umer, Adil Poliwoda, Peter Wallace, Jonathan Carlin, Paul Pääkkönen, Jarmo De Moor, Bart Front Public Health Public Health BACKGROUND: Healthcare data is a rich yet underutilized resource due to its disconnected, heterogeneous nature. A means of connecting healthcare data and integrating it with additional open and social data in a secure way can support the monumental challenge policy-makers face in safely accessing all relevant data to assist in managing the health and wellbeing of all. The goal of this study was to develop a novel health data platform within the MIDAS (Meaningful Integration of Data Analytics and Services) project, that harnesses the potential of latent healthcare data in combination with open and social data to support evidence-based health policy decision-making in a privacy-preserving manner. METHODS: The MIDAS platform was developed in an iterative and collaborative way with close involvement of academia, industry, healthcare staff and policy-makers, to solve tasks including data storage, data harmonization, data analytics and visualizations, and open and social data analytics. The platform has been piloted and tested by health departments in four European countries, each focusing on different region-specific health challenges and related data sources. RESULTS: A novel health data platform solving the needs of Public Health decision-makers was successfully implemented within the four pilot regions connecting heterogeneous healthcare datasets and open datasets and turning large amounts of previously isolated data into actionable information allowing for evidence-based health policy-making and risk stratification through the application and visualization of advanced analytics. CONCLUSIONS: The MIDAS platform delivers a secure, effective and integrated solution to deal with health data, providing support for health policy decision-making, planning of public health activities and the implementation of the Health in All Policies approach. The platform has proven transferable, sustainable and scalable across policies, data and regions. Frontiers Media S.A. 2022-03-31 /pmc/articles/PMC9008448/ /pubmed/35433572 http://dx.doi.org/10.3389/fpubh.2022.838438 Text en Copyright © 2022 Shi, Nikolic, Fischaber, Black, Rankin, Epelde, Beristain, Alvarez, Arrue, Pita Costa, Grobelnik, Stopar, Pajula, Umer, Poliwoda, Wallace, Carlin, Pääkkönen and De Moor. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Public Health Shi, Xi Nikolic, Gorana Fischaber, Scott Black, Michaela Rankin, Debbie Epelde, Gorka Beristain, Andoni Alvarez, Roberto Arrue, Monica Pita Costa, Joao Grobelnik, Marko Stopar, Luka Pajula, Juha Umer, Adil Poliwoda, Peter Wallace, Jonathan Carlin, Paul Pääkkönen, Jarmo De Moor, Bart System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title | System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title_full | System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title_fullStr | System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title_full_unstemmed | System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title_short | System Architecture of a European Platform for Health Policy Decision Making: MIDAS |
title_sort | system architecture of a european platform for health policy decision making: midas |
topic | Public Health |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9008448/ https://www.ncbi.nlm.nih.gov/pubmed/35433572 http://dx.doi.org/10.3389/fpubh.2022.838438 |
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