Cargando…

The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility

BACKGROUND: Although advance care planning (ACP) has been widely recommended to support patient and family engagement in understanding the patient’s values, preferences and goals of care, there are only a few models in paediatric oncology that capture ACP as a process of behaviour change. We aimed t...

Descripción completa

Detalles Bibliográficos
Autores principales:	van Driessche, Anne, Gilissen, Joni, De Vleminck, Aline, Kars, Marijke, Fahner, Jurrianne, van der Werff ten Bosch, Jutte, Deliens, Luc, Cohen, Joachim, Beernaert, Kim
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9010242/ https://www.ncbi.nlm.nih.gov/pubmed/35428281 http://dx.doi.org/10.1186/s12887-022-03247-9

Ejemplares similares

Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation
por: van Driessche, Anne, et al.
Publicado: (2021)

Influence of health interventions on quality of life in seriously ill children at the end of life: a systematic review protocol
por: Piette, Veerle E., et al.
Publicado: (2019)

Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit
por: Fahner, Jurrianne, et al.
Publicado: (2020)

Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review
por: Brunetta, Julie, et al.
Publicado: (2022)

Survey of paediatricians caring for children with life‐limiting conditions found that they were involved in advance care planning
por: Fahner, Jurrianne C., et al.
Publicado: (2019)

Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child
por: Fahner, Jurrianne C., et al.
Publicado: (2020)

Is early integration of palliative home care in oncology treatment feasible and acceptable for advanced cancer patients and their health care providers? A phase 2 mixed-methods study
por: Dhollander, Naomi, et al.
Publicado: (2020)

Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals
por: Verberne, Lisa M., et al.
Publicado: (2020)

How Do General Practitioners Conceptualise Advance Care Planning in Their Practice? A Qualitative Study
por: De Vleminck, Aline, et al.
Publicado: (2016)

When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
por: Kochen, Eline M., et al.
Publicado: (2020)

Barriers to Advance Care Planning in Cancer, Heart Failure and Dementia Patients: A Focus Group Study on General Practitioners' Views and Experiences
por: De Vleminck, Aline, et al.
Publicado: (2014)

Klinefelter syndrome and germ cell tumors: review of the literature
por: Bonouvrie, Kimberley, et al.
Publicado: (2020)

Complex advance care planning interventions for chronic serious illness: how do they work? a scoping review
por: Stevens, Julie, et al.
Publicado: (2022)

Yolk sac tumor in the abdominal wall of an 18-month-old girl: a case report
por: van den Akker, Machiel, et al.
Publicado: (2017)

Development of a complex intervention to support the initiation of advance care planning by general practitioners in patients at risk of deteriorating or dying: a phase 0-1 study
por: De Vleminck, Aline, et al.
Publicado: (2016)

The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey
por: De Vleminck, Aline, et al.
Publicado: (2015)

Facilitating advance care planning in the general practice setting for patients with a chronic, life-limiting illness: protocol for a phase-III cluster-randomized controlled trial and process evaluation of the ACP-GP intervention
por: Stevens, Julie, et al.
Publicado: (2021)

Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care
por: Stevens, Julie, et al.
Publicado: (2023)

Barriers and facilitators for general practitioners to engage in advance care planning: A systematic review
por: De Vleminck, Aline, et al.
Publicado: (2013)

Insight into the content of and experiences with follow‐up conversations with bereaved parents in paediatrics: A systematic review
por: van Kempen, Merel M., et al.
Publicado: (2022)

Risk of malignancy in 22q11.2 deletion syndrome
por: Stevens, Toer, et al.
Publicado: (2017)

Severe neutropenia in a breastfed infant: a case report and discussion of the differential diagnosis
por: van den Broek, Leonie, et al.
Publicado: (2018)

Reintegration Into School After Treatment for a Brain Tumor: The Child’s Perspective
por: Vanclooster, Stephanie, et al.
Publicado: (2019)

Who finds the road to palliative home care support? A nationwide analysis on the use of supportive measures for palliative home care using linked administrative databases
por: Maetens, Arno, et al.
Publicado: (2019)

Soft tissue swelling in children: case report, differential diagnosis, and diagnostic delay
por: Schaefers, Jacqueline, et al.
Publicado: (2016)

Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers
por: Vandenbogaerde, Isabel, et al.
Publicado: (2022)

Implementing advance care planning in routine nursing home care: The development of the theory-based ACP+ program
por: Gilissen, Joni, et al.
Publicado: (2019)

Advance care planning in nursing homes: new conversation and documentation tools
por: Wendrich-van Dael, Annelien, et al.
Publicado: (2021)

What Are Physicians' Reasons for Not Referring People with Life-Limiting Illnesses to Specialist Palliative Care Services? A Nationwide Survey
por: Beernaert, Kim, et al.
Publicado: (2015)

A self-management psychoeducational eHealth program to support and empower people with advanced cancer and their family caregivers: Development using the scrum methodology
por: Van Goethem, Vincent, et al.
Publicado: (2023)

Barriers and facilitators to the implementation of a paediatric palliative care team
por: Verberne, Lisa M., et al.
Publicado: (2018)

Implementing the theory-based advance care planning ACP+ programme for nursing homes: study protocol for a cluster randomised controlled trial and process evaluation
por: Gilissen, Joni, et al.
Publicado: (2020)

Integrated Palliative Care for Nursing Home Residents: Exploring the Challenges in the Collaboration between Nursing Homes, Home Care and Hospitals
por: Hermans, Sofie, et al.
Publicado: (2019)

The Effect of Robot-Led Distraction during Needle Procedures on Pain-Related Memory Bias in Children with Chronic Diseases: A Pilot and Feasibility Study
por: Rheel, Emma, et al.
Publicado: (2022)

Consultation of parents and healthcare professionals in end-of-life decision-making for neonates and infants: a population-level mortality follow-back physician survey
por: Dombrecht, Laure, et al.
Publicado: (2022)

Impact of palliative home care support on the quality and costs of care at the end of life: a population-level matched cohort study
por: Maetens, Arno, et al.
Publicado: (2019)

Factors associated with the goal of treatment in the last week of life in old compared to very old patients: a population-based death certificate survey
por: Smets, Tinne, et al.
Publicado: (2014)

A post-mortem population survey on foetal-infantile end-of-life decisions: a research protocol
por: Dombrecht, Laure, et al.
Publicado: (2018)

Study of recent and future trends in place of death in Belgium using death certificate data: a shift from hospitals to care homes
por: Houttekier, Dirk, et al.
Publicado: (2011)

Involvement of palliative care in euthanasia practice in a context of legalized euthanasia: A population-based mortality follow-back study
por: Dierickx, Sigrid, et al.
Publicado: (2017)

Cannot write session to /tmp/vufind_sessions/sess_0v1tk333ivq3nrofmd4936iq87