Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective

BACKGROUND: Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare, disabling genetic disorder characterized by congenital malformations of the great toes and progressive heterotopic ossification of soft and connective tissues. Assiduous attention to the unmet needs of this patient community i...

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Detalles Bibliográficos
Autores principales: Pignolo, Robert J., Bedford-Gay, Christopher, Cali, Amanda, Davis, Michelle, Delai, Patricia L. R., Gonzales, Kristi, Hixson, Candace, Kent, Alastair, Newport, Hope, Robert, Manuel, Scott, Christiaan, Kaplan, Frederick S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9014788/
https://www.ncbi.nlm.nih.gov/pubmed/35436894
http://dx.doi.org/10.1186/s13023-022-02224-w

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