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Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews

Rheumatic heart disease (RHD) significantly impacts the lives of First Nations Australians. Failure to eliminate RHD is in part attributed to healthcare strategies that fail to understand the lived experience of RHD. To rectify this, a PhD study was undertaken in the Northern Territory (NT) of Austr...

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Autores principales: Haynes, Emma, Marawili, Minitja, Marika, Makungun B., Mitchell, Alice, Walker, Roz, Katzenellenbogen, Judith M., Bessarab, Dawn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9025526/
https://www.ncbi.nlm.nih.gov/pubmed/35457520
http://dx.doi.org/10.3390/ijerph19084650
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author Haynes, Emma
Marawili, Minitja
Marika, Makungun B.
Mitchell, Alice
Walker, Roz
Katzenellenbogen, Judith M.
Bessarab, Dawn
author_facet Haynes, Emma
Marawili, Minitja
Marika, Makungun B.
Mitchell, Alice
Walker, Roz
Katzenellenbogen, Judith M.
Bessarab, Dawn
author_sort Haynes, Emma
collection PubMed
description Rheumatic heart disease (RHD) significantly impacts the lives of First Nations Australians. Failure to eliminate RHD is in part attributed to healthcare strategies that fail to understand the lived experience of RHD. To rectify this, a PhD study was undertaken in the Northern Territory (NT) of Australia, combining Aboriginal ways of knowing, being and doing with interviews (24 participants from clinical and community settings) and participant observation to privilege Aboriginal voices, including the interpretations and experiences of Aboriginal co-researchers (described in the adjunct article). During analysis, Aboriginal co-researchers identified three interwoven themes: maintaining good feelings; creating clear understanding (from good information); and choosing a good djalkiri (path). These affirm a worldview that prioritises relationships, positive emotions and the wellbeing of family/community. The findings demonstrate the inter-connectedness of knowledge, choice and behaviour that become increasingly complex in stressful and traumatic health, socioeconomic, political, historical and cultural contexts. Not previously heard in the RHD domain, the findings reveal fundamental differences between Aboriginal and biomedical worldviews contributing to the failure of current approaches to communicating health messages. Mitigating this, Aboriginal co-researchers provided targeted recommendations for culturally responsive health encounters, including: communicating to create positive emotions; building trust; and providing family and community data and health messages (rather than individualistic).
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spelling pubmed-90255262022-04-23 Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews Haynes, Emma Marawili, Minitja Marika, Makungun B. Mitchell, Alice Walker, Roz Katzenellenbogen, Judith M. Bessarab, Dawn Int J Environ Res Public Health Article Rheumatic heart disease (RHD) significantly impacts the lives of First Nations Australians. Failure to eliminate RHD is in part attributed to healthcare strategies that fail to understand the lived experience of RHD. To rectify this, a PhD study was undertaken in the Northern Territory (NT) of Australia, combining Aboriginal ways of knowing, being and doing with interviews (24 participants from clinical and community settings) and participant observation to privilege Aboriginal voices, including the interpretations and experiences of Aboriginal co-researchers (described in the adjunct article). During analysis, Aboriginal co-researchers identified three interwoven themes: maintaining good feelings; creating clear understanding (from good information); and choosing a good djalkiri (path). These affirm a worldview that prioritises relationships, positive emotions and the wellbeing of family/community. The findings demonstrate the inter-connectedness of knowledge, choice and behaviour that become increasingly complex in stressful and traumatic health, socioeconomic, political, historical and cultural contexts. Not previously heard in the RHD domain, the findings reveal fundamental differences between Aboriginal and biomedical worldviews contributing to the failure of current approaches to communicating health messages. Mitigating this, Aboriginal co-researchers provided targeted recommendations for culturally responsive health encounters, including: communicating to create positive emotions; building trust; and providing family and community data and health messages (rather than individualistic). MDPI 2022-04-12 /pmc/articles/PMC9025526/ /pubmed/35457520 http://dx.doi.org/10.3390/ijerph19084650 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Haynes, Emma
Marawili, Minitja
Marika, Makungun B.
Mitchell, Alice
Walker, Roz
Katzenellenbogen, Judith M.
Bessarab, Dawn
Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title_full Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title_fullStr Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title_full_unstemmed Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title_short Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews
title_sort living with rheumatic heart disease at the intersection of biomedical and aboriginal worldviews
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9025526/
https://www.ncbi.nlm.nih.gov/pubmed/35457520
http://dx.doi.org/10.3390/ijerph19084650
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