Cargando…

Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families

(1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale d...

Descripción completa

Detalles Bibliográficos
Autores principales: Nigro, Olga, Sironi, Giovanna, Ferrari, Andrea, Tinè, Gabriele, Infante, Gabriele, Barretta, Francesco, Silva, Matteo, Clerici, Carlo Alfredo, Chiaravalli, Stefano, Schiavello, Elisabetta, Biassoni, Veronica, Podda, Marta, Meazza, Cristina, Spreafico, Filippo, Casanova, Michela, Terenziani, Monica, Luksch, Roberto, Massimino, Maura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9025749/
https://www.ncbi.nlm.nih.gov/pubmed/35455598
http://dx.doi.org/10.3390/children9040554
_version_ 1784690950540361728
author Nigro, Olga
Sironi, Giovanna
Ferrari, Andrea
Tinè, Gabriele
Infante, Gabriele
Barretta, Francesco
Silva, Matteo
Clerici, Carlo Alfredo
Chiaravalli, Stefano
Schiavello, Elisabetta
Biassoni, Veronica
Podda, Marta
Meazza, Cristina
Spreafico, Filippo
Casanova, Michela
Terenziani, Monica
Luksch, Roberto
Massimino, Maura
author_facet Nigro, Olga
Sironi, Giovanna
Ferrari, Andrea
Tinè, Gabriele
Infante, Gabriele
Barretta, Francesco
Silva, Matteo
Clerici, Carlo Alfredo
Chiaravalli, Stefano
Schiavello, Elisabetta
Biassoni, Veronica
Podda, Marta
Meazza, Cristina
Spreafico, Filippo
Casanova, Michela
Terenziani, Monica
Luksch, Roberto
Massimino, Maura
author_sort Nigro, Olga
collection PubMed
description (1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan in order to explore how the pandemic had affected the experience of patients who had been or were being treated at our hospital, as well as their families. These questionnaires were administered to three groups of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as important, and it was reported that 77.5% of parents judged social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents’ opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topics of relationships in the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients’ parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, all parents indicated strong degrees of satisfaction with the care received and the organizational arrangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families.
format Online
Article
Text
id pubmed-9025749
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-90257492022-04-23 Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families Nigro, Olga Sironi, Giovanna Ferrari, Andrea Tinè, Gabriele Infante, Gabriele Barretta, Francesco Silva, Matteo Clerici, Carlo Alfredo Chiaravalli, Stefano Schiavello, Elisabetta Biassoni, Veronica Podda, Marta Meazza, Cristina Spreafico, Filippo Casanova, Michela Terenziani, Monica Luksch, Roberto Massimino, Maura Children (Basel) Article (1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan in order to explore how the pandemic had affected the experience of patients who had been or were being treated at our hospital, as well as their families. These questionnaires were administered to three groups of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as important, and it was reported that 77.5% of parents judged social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents’ opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topics of relationships in the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients’ parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, all parents indicated strong degrees of satisfaction with the care received and the organizational arrangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families. MDPI 2022-04-13 /pmc/articles/PMC9025749/ /pubmed/35455598 http://dx.doi.org/10.3390/children9040554 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Nigro, Olga
Sironi, Giovanna
Ferrari, Andrea
Tinè, Gabriele
Infante, Gabriele
Barretta, Francesco
Silva, Matteo
Clerici, Carlo Alfredo
Chiaravalli, Stefano
Schiavello, Elisabetta
Biassoni, Veronica
Podda, Marta
Meazza, Cristina
Spreafico, Filippo
Casanova, Michela
Terenziani, Monica
Luksch, Roberto
Massimino, Maura
Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title_full Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title_fullStr Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title_full_unstemmed Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title_short Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
title_sort managing care during the covid-19 pandemic: the point of view and fears of pediatric cancer patients’ families
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9025749/
https://www.ncbi.nlm.nih.gov/pubmed/35455598
http://dx.doi.org/10.3390/children9040554
work_keys_str_mv AT nigroolga managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT sironigiovanna managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT ferrariandrea managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT tinegabriele managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT infantegabriele managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT barrettafrancesco managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT silvamatteo managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT clericicarloalfredo managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT chiaravallistefano managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT schiavelloelisabetta managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT biassoniveronica managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT poddamarta managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT meazzacristina managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT spreaficofilippo managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT casanovamichela managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT terenzianimonica managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT lukschroberto managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies
AT massiminomaura managingcareduringthecovid19pandemicthepointofviewandfearsofpediatriccancerpatientsfamilies