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Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic

For cancer patients undergoing treatment who may be at higher risk of COVID-19, access to high-quality online health information (OHI) may be of particular importance amidst a plethora of harmful medical misinformation online. Therefore, we assessed the readability and quality of OHI available for v...

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Autores principales: Schluter, Cameron, Fefer, Maia, Lee, Grace, Alty, Isaac G., Dee, Edward Christopher
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9038169/
https://www.ncbi.nlm.nih.gov/pubmed/35469115
http://dx.doi.org/10.1007/s13187-022-02140-4
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author Schluter, Cameron
Fefer, Maia
Lee, Grace
Alty, Isaac G.
Dee, Edward Christopher
author_facet Schluter, Cameron
Fefer, Maia
Lee, Grace
Alty, Isaac G.
Dee, Edward Christopher
author_sort Schluter, Cameron
collection PubMed
description For cancer patients undergoing treatment who may be at higher risk of COVID-19, access to high-quality online health information (OHI) may be of particular importance amidst a plethora of harmful medical misinformation online. Therefore, we assessed the readability and quality of OHI available for various cancer types and treatment modalities. Search phrases included “cancer radiation COVID,” “cancer surgery COVID,” “cancer chemotherapy COVID,” and “cancer type COVID,” for the fourteen most common cancer types (e.g., “prostate cancer COVID” and “breast cancer COVID”), yielding a total of 17 search phrases. The first 20 sources were recorded and analyzed for each keyword, yielding a total of 340 unique sources. For each of these sources, the approximate grade level required to comprehend the text was calculated as a mean of five validated readability scores; subsequently, for the first ten results of each search, the DISCERN tool was manually used to assess quality. Search terms were translated into Spanish and French, and a quality assessment using the Health on the Net Code (HONcode) accreditation was conducted. The median grade level readability for all sources was 13 (IQR 11–14). Median DISCERN scores for the 170 sources assessed were 55 out of 75, suggesting good quality. OHI with quality scores below the median DISCERN score had a median readability of 12.5 (IQR 11–14) grade reading level vs 14 (IQR 12–17) for those above the median DISCERN score (T-test P < 0.0001). Percentages of HONcode-accredited websites were 34.9%, 39.9%, and 38.6% for English, Spanish, and French OHI, respectively. We conclude that efforts are needed to make high-quality OHI available at the appropriate reading level for patients with cancer; such efforts may contribute to the alleviation of disparities in access to healthcare information.
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spelling pubmed-90381692022-04-26 Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic Schluter, Cameron Fefer, Maia Lee, Grace Alty, Isaac G. Dee, Edward Christopher J Cancer Educ Article For cancer patients undergoing treatment who may be at higher risk of COVID-19, access to high-quality online health information (OHI) may be of particular importance amidst a plethora of harmful medical misinformation online. Therefore, we assessed the readability and quality of OHI available for various cancer types and treatment modalities. Search phrases included “cancer radiation COVID,” “cancer surgery COVID,” “cancer chemotherapy COVID,” and “cancer type COVID,” for the fourteen most common cancer types (e.g., “prostate cancer COVID” and “breast cancer COVID”), yielding a total of 17 search phrases. The first 20 sources were recorded and analyzed for each keyword, yielding a total of 340 unique sources. For each of these sources, the approximate grade level required to comprehend the text was calculated as a mean of five validated readability scores; subsequently, for the first ten results of each search, the DISCERN tool was manually used to assess quality. Search terms were translated into Spanish and French, and a quality assessment using the Health on the Net Code (HONcode) accreditation was conducted. The median grade level readability for all sources was 13 (IQR 11–14). Median DISCERN scores for the 170 sources assessed were 55 out of 75, suggesting good quality. OHI with quality scores below the median DISCERN score had a median readability of 12.5 (IQR 11–14) grade reading level vs 14 (IQR 12–17) for those above the median DISCERN score (T-test P < 0.0001). Percentages of HONcode-accredited websites were 34.9%, 39.9%, and 38.6% for English, Spanish, and French OHI, respectively. We conclude that efforts are needed to make high-quality OHI available at the appropriate reading level for patients with cancer; such efforts may contribute to the alleviation of disparities in access to healthcare information. Springer US 2022-04-25 2023 /pmc/articles/PMC9038169/ /pubmed/35469115 http://dx.doi.org/10.1007/s13187-022-02140-4 Text en © The Author(s) under exclusive licence to American Association for Cancer Education 2022 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Article
Schluter, Cameron
Fefer, Maia
Lee, Grace
Alty, Isaac G.
Dee, Edward Christopher
Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title_full Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title_fullStr Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title_full_unstemmed Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title_short Investigation of the Readability and Reliability of Online Health Information for Cancer Patients During the Coronavirus Pandemic
title_sort investigation of the readability and reliability of online health information for cancer patients during the coronavirus pandemic
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9038169/
https://www.ncbi.nlm.nih.gov/pubmed/35469115
http://dx.doi.org/10.1007/s13187-022-02140-4
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