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Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program

Simultaneous pancreas-kidney transplantation (SPKT) leads to increased survival and quality of life, and is an alternative treatment for insulin-dependent diabetes mellitus and end-stage kidney disease. Due to the particularities of this population (often with multiple comorbidities) and of the surg...

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Autores principales: Ventura-Aguiar, Pedro, Bayés-Genís, Beatriu, Amor, Antonio J., Cuatrecasas, Miriam, Diekmann, Fritz, Esmatjes, Enric, Ferrer-Fàbrega, Joana, García-Criado, Ángeles, Musquera, Mireia, Olivella, Silvia, Palou, Eva, Paredes, David, Perea, Sonia, Perez, Anna, Poch, Esteban, Romano, Barbara, Escarrabill, Joan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9047730/
https://www.ncbi.nlm.nih.gov/pubmed/35497883
http://dx.doi.org/10.3389/ti.2022.10223
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author Ventura-Aguiar, Pedro
Bayés-Genís, Beatriu
Amor, Antonio J.
Cuatrecasas, Miriam
Diekmann, Fritz
Esmatjes, Enric
Ferrer-Fàbrega, Joana
García-Criado, Ángeles
Musquera, Mireia
Olivella, Silvia
Palou, Eva
Paredes, David
Perea, Sonia
Perez, Anna
Poch, Esteban
Romano, Barbara
Escarrabill, Joan
author_facet Ventura-Aguiar, Pedro
Bayés-Genís, Beatriu
Amor, Antonio J.
Cuatrecasas, Miriam
Diekmann, Fritz
Esmatjes, Enric
Ferrer-Fàbrega, Joana
García-Criado, Ángeles
Musquera, Mireia
Olivella, Silvia
Palou, Eva
Paredes, David
Perea, Sonia
Perez, Anna
Poch, Esteban
Romano, Barbara
Escarrabill, Joan
author_sort Ventura-Aguiar, Pedro
collection PubMed
description Simultaneous pancreas-kidney transplantation (SPKT) leads to increased survival and quality of life, and is an alternative treatment for insulin-dependent diabetes mellitus and end-stage kidney disease. Due to the particularities of this population (often with multiple comorbidities) and of the surgery (only performed in a few centers), a comprehensive analysis of patients’ experience along the SPKT process is crucial to improve patient care and add value to this procedure. Therefore, we applied a systematic and iterative methodology with the participation of both patients and professional teams working together to explore and identify unmet needs and value-adding steps along the transplant patient journey at an established pancreas transplant program. Four main steps (to comprehend, to explore, to experiment and to assess) led to several interventions around three major areas: Administration and logistics, information and communication, and perceived quality of assistance. As a result, both displacements to the hospital for diagnostic purposes and the time delay involved in joining the patient waiting list for transplantation were reduced in parallel to the administrative procedures. In conclusion, the methodological implementation of key organizational changes has great impact on overall patient experience. Further quantitative analysis from the patient’s perspective will consolidate our program and may add new prototype service design components.
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spelling pubmed-90477302022-04-29 Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program Ventura-Aguiar, Pedro Bayés-Genís, Beatriu Amor, Antonio J. Cuatrecasas, Miriam Diekmann, Fritz Esmatjes, Enric Ferrer-Fàbrega, Joana García-Criado, Ángeles Musquera, Mireia Olivella, Silvia Palou, Eva Paredes, David Perea, Sonia Perez, Anna Poch, Esteban Romano, Barbara Escarrabill, Joan Transpl Int Health Archive Simultaneous pancreas-kidney transplantation (SPKT) leads to increased survival and quality of life, and is an alternative treatment for insulin-dependent diabetes mellitus and end-stage kidney disease. Due to the particularities of this population (often with multiple comorbidities) and of the surgery (only performed in a few centers), a comprehensive analysis of patients’ experience along the SPKT process is crucial to improve patient care and add value to this procedure. Therefore, we applied a systematic and iterative methodology with the participation of both patients and professional teams working together to explore and identify unmet needs and value-adding steps along the transplant patient journey at an established pancreas transplant program. Four main steps (to comprehend, to explore, to experiment and to assess) led to several interventions around three major areas: Administration and logistics, information and communication, and perceived quality of assistance. As a result, both displacements to the hospital for diagnostic purposes and the time delay involved in joining the patient waiting list for transplantation were reduced in parallel to the administrative procedures. In conclusion, the methodological implementation of key organizational changes has great impact on overall patient experience. Further quantitative analysis from the patient’s perspective will consolidate our program and may add new prototype service design components. Frontiers Media S.A. 2022-04-14 /pmc/articles/PMC9047730/ /pubmed/35497883 http://dx.doi.org/10.3389/ti.2022.10223 Text en Copyright © 2022 Ventura-Aguiar, Bayés-Genís, Amor, Cuatrecasas, Diekmann, Esmatjes, Ferrer-Fàbrega, García-Criado, Musquera, Olivella, Palou, Paredes, Perea, Perez, Poch, Romano, Escarrabill. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Health Archive
Ventura-Aguiar, Pedro
Bayés-Genís, Beatriu
Amor, Antonio J.
Cuatrecasas, Miriam
Diekmann, Fritz
Esmatjes, Enric
Ferrer-Fàbrega, Joana
García-Criado, Ángeles
Musquera, Mireia
Olivella, Silvia
Palou, Eva
Paredes, David
Perea, Sonia
Perez, Anna
Poch, Esteban
Romano, Barbara
Escarrabill, Joan
Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title_full Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title_fullStr Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title_full_unstemmed Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title_short Patient Experience in Pancreas-Kidney Transplantation—A Methodological Approach Towards Innovation in an Established Program
title_sort patient experience in pancreas-kidney transplantation—a methodological approach towards innovation in an established program
topic Health Archive
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9047730/
https://www.ncbi.nlm.nih.gov/pubmed/35497883
http://dx.doi.org/10.3389/ti.2022.10223
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