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A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care

The individual wishes and priorities of patients with advanced disease are too often neglected, making a deck of cards with statements reflecting potential wishes and priorities a useful conversation tool. However, in the most ill patients, the card selection and sorting process may be too strenuous...

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Autores principales: Olsson Möller, Ulrika, Beck, Ingela, Fürst, Carl Johan, H. Rasmussen, Birgit
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052860/
https://www.ncbi.nlm.nih.gov/pubmed/35121686
http://dx.doi.org/10.1097/NJH.0000000000000846
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author Olsson Möller, Ulrika
Beck, Ingela
Fürst, Carl Johan
H. Rasmussen, Birgit
author_facet Olsson Möller, Ulrika
Beck, Ingela
Fürst, Carl Johan
H. Rasmussen, Birgit
author_sort Olsson Möller, Ulrika
collection PubMed
description The individual wishes and priorities of patients with advanced disease are too often neglected, making a deck of cards with statements reflecting potential wishes and priorities a useful conversation tool. However, in the most ill patients, the card selection and sorting process may be too strenuous. The aims of this study were to explore the wishes and priorities of patients receiving palliative care and to reduce a deck of statement cards to be clinically useable even for the most ill patients. In interviews, participants selected their top 10 from a deck of 46 statement cards. Descriptive and analytical statistics were used. Thirty-nine patients from 5 specialized palliative care units in Sweden participated. Six participants died within 1 month of the interviews. “To be free from pain” was ranked as the highest priority by the majority, and “To have staff I feel comfortable with” was ranked highest by the 6 most ill participants. A deck of cards with the 20 statements most chosen by patients receiving palliative care was created. The cards cover physical, psychological, social, existential, and practical aspects and are helpful for formulating goals of care for patients and informing the development of a core outcome set for palliative care.
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spelling pubmed-90528602022-05-09 A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care Olsson Möller, Ulrika Beck, Ingela Fürst, Carl Johan H. Rasmussen, Birgit J Hosp Palliat Nurs Feature Articles The individual wishes and priorities of patients with advanced disease are too often neglected, making a deck of cards with statements reflecting potential wishes and priorities a useful conversation tool. However, in the most ill patients, the card selection and sorting process may be too strenuous. The aims of this study were to explore the wishes and priorities of patients receiving palliative care and to reduce a deck of statement cards to be clinically useable even for the most ill patients. In interviews, participants selected their top 10 from a deck of 46 statement cards. Descriptive and analytical statistics were used. Thirty-nine patients from 5 specialized palliative care units in Sweden participated. Six participants died within 1 month of the interviews. “To be free from pain” was ranked as the highest priority by the majority, and “To have staff I feel comfortable with” was ranked highest by the 6 most ill participants. A deck of cards with the 20 statements most chosen by patients receiving palliative care was created. The cards cover physical, psychological, social, existential, and practical aspects and are helpful for formulating goals of care for patients and informing the development of a core outcome set for palliative care. Lippincott Williams & Wilkins 2022-06 2022-02-07 /pmc/articles/PMC9052860/ /pubmed/35121686 http://dx.doi.org/10.1097/NJH.0000000000000846 Text en Copyright © 2022 The Authors. Published by Wolters Kluwer Health, Inc. on behalf of The Hospice and Palliative Nurses Association. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND) (https://creativecommons.org/licenses/by-nc-nd/4.0/) , where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
spellingShingle Feature Articles
Olsson Möller, Ulrika
Beck, Ingela
Fürst, Carl Johan
H. Rasmussen, Birgit
A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title_full A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title_fullStr A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title_full_unstemmed A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title_short A Reduced Deck of Conversation Cards of Wishes and Priorities of Patients in Palliative Care
title_sort reduced deck of conversation cards of wishes and priorities of patients in palliative care
topic Feature Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052860/
https://www.ncbi.nlm.nih.gov/pubmed/35121686
http://dx.doi.org/10.1097/NJH.0000000000000846
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